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A Denver family is trying to raise million in order to cure their son with a rare genetic disease. Doctors told Amber Freed that her 2-year-old son is one of 34 people in the world to have this rare neurological genetic disease. “The disease is so rare, it doesn’t even have a name,” Freed said. “It’s called SLC6A1, because that is the gene that it effects.” The disease causes Maxwell to have trouble moving and communicating, and soon it will only get worse. “The most debilitating part of the disease will begin between the ages of 3 and 4,” Freed said. “So, we are in a fight against time.”Maxwell has a twin sister named Riley. “I noticed early on that Maxwell wasn’t progressing as much as Riley,” Freed said. “I noticed he couldn’t use his hands. The doctors told me that every baby can use their hands. That’s when I realized there was something wrong with him.”After multiple visits to the doctor, Freed was able to find a genetic specialist to give Maxwell a diagnosis. “He looked at me and said, ‘Something is very wrong with your son. I don’t know if he’s going to live,’” Freed said. “My soul was just crushed. It was a sadness I didn’t even know existed on earth. You never think something like this could happen. I left my career, and I had no other choice but to create my own miracle and to find a treatment forward to help Maxwell and all those others like him.” Freed searched for scientists trying to create a cure, which she found at the University of Texas Southwestern Medical Center in Dallas. “We’re working with diseases where kids are born with a defective gene,” said Steven Gray, an associate professor at UTSW in pediatrics. “Our approach is to replace that gene to fix the condition at the level of their DNA. We’re taking the DNA that those patients are missing and packaging that into a virus and use that virus as a molecular delivery truck to carry those genes back in their body and fix their DNA.” “It’s a rare disease, no one has ever heard of it,” Freed said. “But one rare disease messed with the wrong mother.” Freed said she has raised million to help with research for the cure and will need an additional million, in order to let Maxwell and many others continue to enjoy life. “I want Maxwell to have every opportunity that children should have in this life,” Freed said. “When he is having a good day, I just try and soak him in as much as I can. We don’t take anything for granted in this house.” If you want to help donate for the cure, you can do so by visiting 2535
SHREWSBURY, Mass. – Jennifer Ford and her daughters, Addison and McKinley, look like the picture of a happy family. “We’re very close,” she said. It wasn’t always that way, though, especially when Ford gave birth to her younger daughter, McKinley. “I was just in a zone, I guess,” she said. “And then, when I had her, I had a c-section. It was totally unplanned.” So was what happened next: Ford experienced a deep depression. “I did a lot of crying. It was very difficult to carry on a conversation with somebody because all I would do was cry and I couldn't do normal functions,” she said. “Like, I couldn't cook dinner, I couldn't clean my house. It was difficult to even shower.” Help came from an unexpected place: her OB-GYN, through a program called the 774
A Georgia lawmaker is proposing a law that would make it an "aggravated assault" for men to have sex without a condom, and would require men to obtain permission from their sexual partner before seeking a prescription for Viagra or similar erectile dysfunction drugs.Democratic minority whip Dar'shun Kendrick announced her "testicular bill of rights" in a tweet on Monday, noting she'd instructed an aide to draft a bill.Among her other proposals are requirements for DNA testing at the sixth week of pregnancy to determine paternity, as well as requirements for the father to make immediate child support payments. It would also ban vasectomy procedures in the state.Finally, her bill would also introduce a 24-hour waiting period for men to buy any porn or sex toys in Georgia.She highlighted the proposal during a radio interview on Georgia Public Broadcasting on Tuesday afternoon. "If the state of Georgia is going to be concerned with regulating women's reproductive rights, I think it's only fitting that we also do that for men's reproductive rights," she said, adding that her proposal "really is to draw attention to what I think is an absurdity."She's responding to proposed abortion restrictionsKendrick's idea comes after Georgia's House of Representatives passed a 1292
A 12-year veteran of the New York Police Department is accused of putting a hit on her ex-husband and a juvenile girl.A confidential source told the FBI that in February Valerie Cincinelli, 34, had asked him to hire a hitman to kill her estranged husband and the source's daughter, according to court documents.Cincinelli allegedly gave the source ,000 in cash to pay the hitman, and over the next few months they discussed how to kill the two and establish solid alibis, the documents said.Cincinelli allegedly told the source to make her husband's death look like a robbery and to run over the source's daughter -- a minor-- with a car.Authorities say she tracked the girl's whereabouts on social media and plotted how to arrange their deaths with the source until Friday, when she was told by a Suffolk County Police Department detective that her estranged husband had died and there would be an investigation. About a half an hour later, the source showed her photos of the crime scene the hitman had sent via text, the documents said.But that hitman was actually an FBI agent, and that day she was arrested for attempting to hire someone to commit murders, according to the documents.Cincinelli appeared in court on Friday and was held without bail, according to CNN affiliate 1295
"Butter" likes to snack on sweet potato fries and is currently training for a personal best in the turkey trot. Don't forget to VOTE for the National Thanksgiving Turkey! ?? Poll open NOW until Tuesday, November 26, at 11 a.m. ET! pic.twitter.com/UODVwpX0q8— The White House (@WhiteHouse) November 25, 2019 318