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A Colorado family is reaching out to the public for help in treating their 15-year-old son’s rare and debilitating skin condition.For seven years, Jaiden Rogers has suffered from stiff skin syndrome, a disease that causes the skin to harden.“When they said it was stiff skin syndrome – I was like oh good it’s only that,” said Natalie, Jaiden’s mother. “But the doctor said, ‘oh no I don’t think you understand.’ They said his skin would turn to stone. Within a month, he was in a wheelchair. It spread so fast. Within just a few months, he was starting to get it everywhere.”The condition has caused his skin to gradually tighten and harden, spreading from his legs to his hips and then to his stomach and neck.It started as a growth behind his knee. Jaiden has since lost mobility. The syndrome is a painful one as the skin thickens, limiting joint mobility. The syndrome is sparked by a mutation change, and an exact treatment is unknown.With no cure for the disease, Rogers and his family are now banking on an experimental procedure to save his life.“Doctors in Ireland are working with doctors in London. This is very expensive,” Natalie said. “The whole treatment is .5 million, because they actually have to make something for him, because he is the only child. It’s our only hope, and we are running out of time.”Natalie says her son is “turning to stone,” leaving him unable to walk and sometimes giving him trouble breathing. He sees six doctors and takes chemotherapy drugs to slow the disease’s progression.Jaiden is being treated at Children's Hospital in Aurora, Colorado. He may be the only one in the world being treated for what has been tabbed stiff skin syndrome. Altogether, there have only been a few dozen documented cases of the disease.Today, Jaiden remains confined to a wheelchair and takes chemotherapy to slow the progression. However, the condition has since spread to his stomach, chest, and neck, making it difficult for him to breathe.The family has started a GoFundMe page to raise money for the experimental treatment. The fund’s .5 million goal includes 5,000 for a medical flight to Europe. 2142
A Ferguson activist whose son was found dead near her home said she believes he was killed -- even as police investigate the man's death as a suicide.Danye Jones was found on Oct. 17 in a wooded area in St. Louis County, police said. His mother, Melissa McKinnies, said family members found him hanging by a bed sheet from a tree behind their home.By the time police arrived at the scene, the victim was lying on the ground, St. Louis County Police spokesman Shawn McGuire said Thursday.There were no signs of trauma or foul play, and detectives are investigating his death as a suicide after talking to several relatives and friends, he said. 651
A lock of Abraham Lincoln’s hair, wrapped in a bloodstained telegram about his 1865 assassination, is up for sale. Boston-based RR Auction says bidding has opened online for the items ahead of a live auction scheduled for Sept. 12. Measuring roughly 2 inches long, the bushy lock of hair was removed during Lincoln’s postmortem examination after he was fatally shot at Ford’s Theatre in Washington, D.C., by John Wilkes Booth. The auction house says it was given to Dr. Lyman Beecher Todd, a Kentucky postmaster and a cousin of Mary Todd Lincoln, the 16th president’s widow. 582
A congressional delegation will visit the Customs and Border Protection (CPB) station in New Mexico on Tuesday where a 7-year-old Guatemalan girl was taken before she died in a hospital, a congressional aide says.Jakelin Caal Maquin and her father were among a group of 163 migrants detained by Border Patrol agents the night of December 6 in a remote area of the New Mexico desert, according to CPB. She became sick as they were being taken from the Antelope Wells port of entry in New Mexico to the station in Lordsburg, about 90 minutes away.Two days later, Jakelin was dead, officials said. She had vomited and stopped breathing while in Border Patrol custody and later went into cardiac arrest and suffered brain swelling at a Texas hospital.Eleven members of the House of Representatives, led by incoming Hispanic Caucus Chairman Rep. Joaquin Castro will tour the station in Lordsburg, New Mexico, on Tuesday, the congressional aide told CNN.CBP Commissioner Kevin McAleenan also is expected to take part in the tour, the official said.On Thursday, Castro issued a statement saying that he would be asking for a "full investigation by the Inspector General and Congress into the conditions and circumstances that led to (Jakelin's) death.""We can do better as a nation," he said. "This is a humanitarian crisis and we have a moral obligation to ensure these vulnerable families can safely seek asylum, which is legal under immigration and international law at our borders." 1487
A Las Vegas, Nevada woman says she wants out of her apartment lease after a series of unexplained events.Terri Bell says she moved into her Patriots Place Apartment in December 2017 located near Flamingo and Pecos Road. She signed a 12-month lease but soon after she moved in she claims strange things started to happen."At first, I thought maybe it was just my daughter or my grandkids moving through the house," said Bell.Bell says she finally had enough when an object in her apartment moved without explanation. Bell claims a new bottle of bleach came off a shelf and hit a near by wall."It got outrageous, lights were going on and off," said Bell. "Behind the sofa, there's an outlet where sparks flew and fire shout out of it!" explained Bell.Bell enlisted the help of a Catholic priest, a pastor and a paranormal investigator to look into her apartment.KTNV television station in Las Vegas spoke to Pastor Tony Peoples from the Genesis II Christian Center and he confirms he visited the apartment and sensed something was out of the ordinary.Psychic medium Tena Evans along with Paranormal Task Force was contacted to conduct an investigation."Our monitors were hitting max and that is unusual," said Evans.Evans says a team of people inspected the apartment and found evidence of possible paranormal activity."What you do have to be is a skeptic going into a job like this," explained Evans. You just can't assume it's going to be a spirit and you are going to capture it," said Evans.Evans says voice and sound recordings did not capture anything unusual during the investigation."We have to look for electrical problems or certain plumbing problems," said Evans.However, photos taken within the apartment show possible signatures of paranormal evidence, according to Evans."Orbs are sometimes just dust, it can be anything, different lights, whatever is going on," said Evans. "These orbs are big and it is evident that this is not something that the camera or lighting, or dust is creating," said Evans.Evans believes the phenomenon are associated with the land and not the building.KTNV consulted with Mark Hall-Patton, who is the administrator for Clark County Museum and expert on Clark County History about the parcel of land."There wasn't a lot going on," said Hall-Patton about the area going back as far as ancient times.Indigenous people likely avoided the desolate and arid landscape in favor or more accessible water sources and fertile farming land, according to Hall-Patton.Hall-Patton points to maps, satellite views and deeds dating back to 1970 which shows the lot was vacant."It's a fairly anonymous little chunk of land that didn't develop until relatively recently," added Hall-Patton.Hall-Patton says there was no significant historical event that occurred on the property.Bell began using black salt, sage and various types of crystals to keep her unit nice and quiet.Ultimately, Bell would like to move out of her apartment. Contact 13 reviewed the lease and it did not contain an option to break the contract early for her situation.Apartment ownership, Accessible Space, Inc., said there is likely a plausible and mechanical explanation for the strange occurrences. A spokesperson tells KTNV the building is new and still under warranty. Power problems, odors and unfamiliar noises are common in new buildings but management will have the general contractor investigate the claims to make sure everything is in order.The building's ownership says they will work with Bell to make sure she understands her options. 3615