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The pandemic has raised awareness about convalescent plasma donation to treat coronavirus patients. But for hundreds of thousands of people who rely on regular plasma infusions to survive, a looming shortage is raising alarm bells.Mother, wife and rare disease advocate Deborah Vick lives with myasthenia gravis, a neuromuscular disorder that disrupts nerve to muscle communication.“The messages are no longer being able to reach the muscles to make them work--whether that is to walk or move or swallow or breathe--it's all interconnected,” described Vick.There is no cure, so every two weeks, she requires plasma infusions.“Being in crisis is the worst time to have to wait for treatment,” she explained. “I know, for me, my treatments are every two weeks and days before my treatment starts, my breathing is extremely labored.”Many types of primary immunodeficiency disorders like Vick’s result in an inability to produce antibodies or immunoglobulin to fight off infection.“There's about 250,000 of us in the United States alone,” said John Boyle, president and CEO of the Immune Deficiency Foundation.Canceled drives and fear of COVID-19 exposure, he says, have contributed to a drop in plasma donations for non-COVID therapy.This comes as the Red Cross says hospital distributions of convalescent plasma have increased 250 percent in November compared to September.“To not meet the rising demand is one thing, but to actually have less plasma is potentially very, very, very problematic,” said Boyle.Experts say it takes seven to 12 months to turn around plasma for patient infusion therapies. We are now nine months into the pandemic and a crisis say some could be around the corner.“There is a growing concern about the ability to meet patient clinical need,” said Amy Enfantis, president and CEO of the Plasma Protein Therapeutics Association.She says while the call for convalescent plasma therapies for COVID-19 has raised awareness, there is still an increased need for other rare-disease patients.“Our companies are making therapies every day for patients who have a perpetual need for plasma,” said Enfantis. “And that is ongoing regardless of a pandemic.”For those who rely on plasma donation and infusion treatment like Vick, it could mean the difference between life and death.“The biggest fear is not having the treatments that keep me alive. I mean, reality is I don't know what kind of life I will have, if any, how it will function without my infusions.”It’s why so many are hoping those who can, will give. 2536
The NFL is planning on playing “Lift Every Voice and Sing” before all Week 1 football games this fall, a source familiar with the league’s discussions confirmed with EW Scripps on Thursday.USA Today and ESPN first reported that the NFL is in the process of finalizing plans to play the song considered a “Black Anthem.” The source said the song would be performed before the Star Spangled Banner before Week 1 games in September.The source said the league is working collaboratively with players to recognize victims of systemic racism throughout the season through a variety of in-game and programs. Among the items being discussed with players are: on-uniform elements, which could include the names of victims police brutality on helmet decals or jerseys patches and educational programs. The league is also considering public service announcements. The NFL is said to be in discussions with the NFLPA to finalize the plans. Earlier this week, NASCAR played “Lift Every Voice and Sing” before the Pocono 350. The song has also been performed at other various sporting events, including a Georgetown men's basketball game.The lyrics to the song were written as a poem in 1900 and set to music five years later. Last month, amid a nationwide protests in response to the death of George Floyd, NFL Commissioner Roger Goodell, who faced blame for not standing behind players who participated in protests, conceded he was wrong about players kneeling during the national anthem in response to police brutality.Goodell stated his support for Black Lives Matter in a video released on social media."We the National Football League, condemn racism and the systematic oppression of black people," Goodell said. "We, the National Football League, admit we were wrong for not listening to NFL players earlier and encourage all to speak out and peacefully protest," Goodell said. 1879

The Justice Department has dropped its case against a woman who laughed out loud during the confirmation hearing for Attorney General Jeff Sessions, ending months of legal wrangling.The woman, Desiree Fairooz, was protesting with Code Pink, a progressive group whose activists are regularly seen around Washington. She was arrested by a Capitol Police officer after audibly laughing during Sessions' confirmation hearing in January.But prosecutors filed a "nolle prosequi," or notice that it would no longer pursue charges, with the DC Superior Court on Monday.She had been prosecuted by the DC US Attorney's Office and had been convicted of a misdemeanor before a judge threw out the conviction in July and ordered a new trial. The government had decided to retry the case after Fairooz rejected a plea deal, and a trial date had been set for next week.Fairooz tweeted the notice was a "relief" Monday night."Just received this, "Governments Notice of Nolle Prosequi" What a relief! Guess they've got enough "laughing" matters to deal with!" she tweeted.The US Attorney's Office declined to explain what had changed."The US Attorney's Office for the District of Columbia yesterday filed a notice dismissing the case involving Desiree Ali-Fairooz," said spokesman Bill Miller. "The US Attorney's Office typically does not discuss charging decisions, and has no comment on the decision to dismiss this particular case."The original arrest happened after Fairooz laughed after Alabama Republican Sen. Richard Shelby told senators at Sessions' confirmation hearing that his former colleague had a record of "treating all Americans equally under the law."Her laughter lasted a few seconds and Shelby continued with his speech without acknowledging the disturbance.Fairooz's attorney said in a statement his client is "relieved and happy" about the result."Yesterday the government dismissed the case for reasons I can only speculate about. And which I may never fully know (though I have various theories)," Samuel Bogash said in an email. "Though as her lawyer I would have preferred a 'not guilty' at the first trial, I'm happy for Ms. Fairooz." 2156
The percentage of Americans who say they would probably or definitely get a COVID-19 vaccine when one becomes available has sharply decreased in just the last few months.A survey done in mid-September by the Pew Research Center found only 51 percent of respondents would definitely or probably get the vaccine when one became available. A similar survey done in May found 72 percent of participants would definitely or probably get the vaccine. The 21 point drop was all in the “definitely would get the vaccine” category, according to the data.According to the data, a large drop in the number of American who would get the vaccine was seen in both Republican leaning respondents and Democratic leaning.Republican participants went from 65 percent would get the vaccine in May to 44 percent in September. Participants who identified as Democratic went from 79 percent would get the vaccine in May to 58 percent in September.Large drops were seen across gender, race and ethnicity as well.“About three-quarters of Americans (77%) say it is at least somewhat likely that a vaccine for COVID-19 will be approved and used in the U.S. before it’s fully known whether it is safe and effective, including 36% who say this is very likely to happen,” Pew Research Center wrote of their findings.Of the 49 percent who would not get a vaccine, the majority of them are worried about potential side effects.Side effects are also a concern for those who would get the vaccine. Of the 51 percent who said they would probably or definitely get the vaccine, more than half said that if many people were experiencing minor side effects they would reconsider getting the vaccine.The data came from more than 10,000 Americans surveyed between September 8-13. 1748
The Lumberton, NC Police Department said that authorities have found a body during a search for missing 13-year-old Hania Aguilar, who was reported missing on Nov. 5. Authorities said Aguilar was abducted by a man dressed in black and wearing a yellow bandana while she was standing outside her family's home on Nov. 5. A ,000 reward was issued for information on Aguilar's whereabouts. Authorities released the following statement Tuesday evening: 484
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