天津市龙济泌尿是否全周上班(天津市龙济医院男科医院路线) (今日更新中)

A Denver family is trying to raise million in order to cure their son with a rare genetic disease. Doctors told Amber Freed that her 2-year-old son is one of 34 people in the world to have this rare neurological genetic disease. “The disease is so rare, it doesn’t even have a name,” Freed said. “It’s called SLC6A1, because that is the gene that it effects.” The disease causes Maxwell to have trouble moving and communicating, and soon it will only get worse. “The most debilitating part of the disease will begin between the ages of 3 and 4,” Freed said. “So, we are in a fight against time.”Maxwell has a twin sister named Riley. “I noticed early on that Maxwell wasn’t progressing as much as Riley,” Freed said. “I noticed he couldn’t use his hands. The doctors told me that every baby can use their hands. That’s when I realized there was something wrong with him.”After multiple visits to the doctor, Freed was able to find a genetic specialist to give Maxwell a diagnosis. “He looked at me and said, ‘Something is very wrong with your son. I don’t know if he’s going to live,’” Freed said. “My soul was just crushed. It was a sadness I didn’t even know existed on earth. You never think something like this could happen. I left my career, and I had no other choice but to create my own miracle and to find a treatment forward to help Maxwell and all those others like him.” Freed searched for scientists trying to create a cure, which she found at the University of Texas Southwestern Medical Center in Dallas. “We’re working with diseases where kids are born with a defective gene,” said Steven Gray, an associate professor at UTSW in pediatrics. “Our approach is to replace that gene to fix the condition at the level of their DNA. We’re taking the DNA that those patients are missing and packaging that into a virus and use that virus as a molecular delivery truck to carry those genes back in their body and fix their DNA.” “It’s a rare disease, no one has ever heard of it,” Freed said. “But one rare disease messed with the wrong mother.” Freed said she has raised million to help with research for the cure and will need an additional million, in order to let Maxwell and many others continue to enjoy life. “I want Maxwell to have every opportunity that children should have in this life,” Freed said. “When he is having a good day, I just try and soak him in as much as I can. We don’t take anything for granted in this house.” If you want to help donate for the cure, you can do so by visiting 2535

You could be one of the millions of Americans who have had your driver's license photo scanned without your knowledge or consent. A new report reveals both the Federal Bureau of Investigation and U.S. Immigration and Customs Enforcement agents are using facial recognition technology to scan driver's license photos as part of investigations. In addition to privacy concerns, critics point out facial recognition technology is both unregulated and can be inaccurate. “An innocent individual could become the target of a law enforcement investigation, simply because you have a glitchy computer system,” Jake Laperruque, with Project on Government Oversight, says.Laperruque is a privacy advocate for the watchdog organization. “I would bet most people in states don't want their photos being churned through an FBI database to search for random investigative targets,” he says. New research from Georgetown Law revealed the first known instance of ICE agents analyzing driver's license photos without any consent, which could put more pressure on Congress to act. Both Democrats and Republicans have expressed concerns about the technology at congressional hearings this session. “More than half of American adults are part of facial recognition databases and they might not even know it,” expressed Elijah Cummings (D-Maryland). “It doesn't matter what side of the political spectrum you're on, this should concern us all,” said Jim Jordan (R-Ohio). As Congress weighs legislation to regulate facial recognition, some cities have started to ban law enforcement and public agencies from using the software. 1621

View this post on Instagram CALIFORNIA GROWN COFFEE // We are excited to announce our partnership with Mraz Family Farms, owned by Jason Mraz, to provide the first-ever San Diego grown coffee to our customers! This is the first time a Geisha varietal has been grown and harvested on San Diego soil, roasted in San Diego and made available to local consumers. The unique availability of intercontinental-grown coffee is made available due to Frinj Coffee’s proprietary coffee plants that have proven viability in partnering with avocado farms in Southern California. Mraz Family Farms is one of the early Frinj Coffee growers, is a certified organic operation, and located in northern San Diego. This year marked the largest harvest to date and is the first time Mraz Family Farm coffee will be available to San Diego, and only through Bird Rock Coffee Roasters.?? ___?? While supplies last this exclusive coffee will be available on pour over at all Bird Rock Coffee Roasters Cafes this Saturday, 10/5 starting at 10am.?? ___?? Be the first to try this incredible San Diego grown Geisha & potentially meet the grower, Jason Mraz! The Mraz Family Geisha has tasting notes of jasmine tea, honey, key lime pie, and elderflower.?? ___?? #empoweredbygreatcoffee #sustainablyservedcoffee #mrazfamilyfarms #californiacoffee?? @jason_mraz @mrazfamilyfarms @frinjcoffee?? A post shared by Bird Rock Coffee Roasters (@birdrockcoffeeroasters) on Oct 2, 2019 at 5:46pm PDT 1489

A federal judge in California ruled against the Trump administration on Friday in two different cases, ultimately preventing .5 billion in federal funds from being used for a border wall in portions of California, New Mexico, Texas and Arizona.In the first case, US District Court for Northern California ruled in favor of a challenge to President Donald Trump's attempt to move billions from the Defense Department budget toward building a border wall in El Centro, California, and New Mexico.Trump's move was done as part of his national emergency declaration in February. California Attorney General Xavier Becerra filed the lawsuit, joined by 16 states, soon afterward.Becerra celebrated the ruling Friday, which he said permanently stops the administration from proceeding with construction on the wall."These rulings critically stop President Trump's illegal money grab to divert .5 billion of unauthorized funding for his pet project," Becerra said. "All President Trump has succeeded in building is a constitutional crisis, threatening immediate harm to our state. President Trump said he didn't have to do this and that he would be unsuccessful in court. Today we proved that statement true."CNN has reached out to the White House for comment.Judge Haywood Gilliam determined in the 1308

A lawyer for an indicted associate of Rudy Giuliani tells CNN that his client is willing to tell Congress about meetings the top Republican on the House Intelligence Committee had in Vienna last year with a former Ukrainian prosecutor to discuss digging up dirt on Joe Biden.The attorney, Joseph A. Bondy, represents Lev Parnas, the recently indicted Soviet-born American who worked with Giuliani to push claims of Democratic corruption in Ukraine. Bondy said that Parnas was told directly by the former Ukrainian official that he met last year in Vienna with Rep. Devin Nunes."Mr. Parnas learned from former Ukrainian Prosecutor General Victor Shokin that Nunes had met with Shokin in Vienna last December," said Bondy.Shokin was ousted from his position in 2016 after 782

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