山东关节痛风的症状是什么病(济南治疗痛风哪里) (今日更新中)

With ventilators hard to find amid the spread of the coronavirus, families across the world worked together to find a ventilator for a child in Ecuador. Wilson, at age 18 months, is at an age one half of children with Centronuclear Myopathy don't get to see."At the beginning, they didn’t get any diagnosis, it was 5 months until they got the diagnosis. The first months it was very uncertain what was going to happen. They had no idea and because of the disease is very, very uncommon and rare, the doctor had no idea," said Jen Bilbao, translator for the family."These children are born very weak, a majority of them do not breathe spontaneously on their own. They cannot eat orally, cannot sit up on their own," said Alison Frase, Joshua Frase Foundation cofounder.That means they need a ventilator, something that was in short supply here in the U.S. just a few weeks ago, but is nearly impossible to find in Ecuador. Frase's son, Joshua, was born with Myotubular Myopathy in 1995. He passed away 15 years later. And in his death, Alison started the Joshua Frase Foundation and an equipment exchange program."That’s the first family we have in Ecuador because normally the children there with this kind of diseases, unfortunately they don’t survive because there is not equipment," said Bilbao. "It’s very, very hard for them to go home so there’s little that they can do for them."Bilbao used to live in Ecuador. Now, she’s in Germany. She started CNM – Together Strong!, an association that helps families with centronuclear myopathies in Germany after her son was born with Myotubular Myopathy. Wilson’s parents got ahold of her after finding information online in Spanish — asking for help finding a ventilator so they could bring Wilson home."She was very desperate because she thought she was going to be at the hospital her whole life," Bilbao said, translating for Wilson's mom.Bilbao reached out to Frase to see if there was anything she could do to help."I was scrambling making posts on our private groups looking for the equipment to piecemeal this ventilator together," said Frase. "I knew I had a ventilator from, unfortunately, a child, actually a young man, that had passed this year, and I reached out to that mom, and she said absolutely you can have it."The ventilator came from a family in Utah, the plug, connectors, and other parts from another family in Utah, and the humidifier from a family in Texas. They were shipped to Bilbao’s brother who still lives in Ecuador to take to the family."We couldn’t ship it to the hospital because they were feeling that it’s going to get lost at the hospital. Then where they live there’s no post office because they don’t live in the city they live outside the city, it’s very hard for the post to get packages to them," said Bilbao.For Wilson’s parents, this gift is more than just a medical device."They felt really like they could breathe again. So it was not only a breath for their child, but a breath for them because they didn’t know what to do. And to know that somebody was going to help, it was very peaceful," said Bilbao. 3107

at a Colorado nursing home, but the facility is defending its reputation.Miaya Ramirez only worked for University Heights Rehab & Care a few months but what she saw will stay with her much longer. “Patients being neglected, not getting showers, not getting fed properly, being left in their room, unsanitary conditions, being left in soiled briefs,” Ramirez explained to KMGH. The week after she started working, Ramirez says the Director of Nursing asked her to lie on a state report about being understaffed. “We had holes in the staffing book and the DON (Director of Nursing) asked me to fill in people's names in the staffing book and I told her I didn’t feel comfortable doing that,” she said. Ramirez says she was suspended and ultimately fired for trying to care for patients not being helped by nursing staff. She says the doctor of one patient even called police about the neglect. “When the doctor pulled the bandages off she couldn't believe what she saw; she said the wounds were worse,” Ramirez said. “She asked if the dressings were being changed when they were supposed to, if the resident was getting up out of bed when she was supposed to and I told her 'no,'” Ramirez said. Ultimately, Ramirez was fired for putting a clean bandage on that patient. She shared recordings of her termination. University Heights said she was operating out of the scope of care. “What they told me was I should have left the dirty bandage on her backside,” Ramirez said. Operated by Vivage, University Heights says Ramirez is a disgruntled employee and her claims are unsubstantiated. “We are truly a very compassionate organization with a lot of experience. We are the largest provider of skilled nursing in the state of Colorado,” Daphne Bernstein, Senior Vice President of Business Development, said. But complaints investigated by the 1844

Workers have a right to safety by law, but an advocacy group claims its new report proves those laws aren't being enforced.The National Employment Law Project (NELP) analyzed data from the Occupational Safety and Health Administration (OSHA) from April to early August and found more than 1,700 workers filed complaints, saying their employers retaliated against them for raising coronavirus safety concerns.NELP tells us they've even heard from workers who asked for masks and were fired. More than half of the complaints were dismissed without investigation, while 2% were investigated and resolved by OSHA.“Instead of an agency that's there to assure that workers have a safe workplace, it's there to assure that you know large employers that want to violate the law that they get off the hook,” said Debbie Berkowitz, Director of the NELP Worker Health and Safety Program.Berkowitz is one of the authors of the report. She worked at OSHA under the Obama administration. She says the agency should've acted with “emergency temporary standards” for safety during the pandemic.“But instead, the administration has done almost no enforcement in this pandemic to protect workers against employers that flagrantly violate the CDC guidelines, because they're just guidelines, they're not mandatory,” said Berkowitz.Berkowitz thinks there would be more complaints if workers felt protected.If you are punished for speaking up, she says you should still file a complaint with OSHA within 30 days. Even if it's dismissed, she's still advocating for people to share their stories.“We need to understand what working people are facing, especially our essential workers who are working outside of the home, and we need to make sure that we're protecting these workers,” said Berkowitz.In a statement to The Washington Post, OSHA said it's committed to these investigations. The agency says the amount of closed complaints related to the coronavirus have been consistent with its normal average. 1993

in a settlement last week."Silent Sam" was a monument dedicated to students of the school who fought for the Confederacy during the Civil War. It was dedicated in 1913 and stood for over 100 years before it was 213

for coronavirus.Folding@Home, a project that uses the collective computing power of thousands of computers around the world to simulate protein dynamics, is attempting to find ways to treat COVID-19.By 204

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