江苏青山肿瘤科哪家医院好(上海肺结节不能吃六种食物) (今日更新中)

With ventilators hard to find amid the spread of the coronavirus, families across the world worked together to find a ventilator for a child in Ecuador. Wilson, at age 18 months, is at an age one half of children with Centronuclear Myopathy don't get to see."At the beginning, they didn’t get any diagnosis, it was 5 months until they got the diagnosis. The first months it was very uncertain what was going to happen. They had no idea and because of the disease is very, very uncommon and rare, the doctor had no idea," said Jen Bilbao, translator for the family."These children are born very weak, a majority of them do not breathe spontaneously on their own. They cannot eat orally, cannot sit up on their own," said Alison Frase, Joshua Frase Foundation cofounder.That means they need a ventilator, something that was in short supply here in the U.S. just a few weeks ago, but is nearly impossible to find in Ecuador. Frase's son, Joshua, was born with Myotubular Myopathy in 1995. He passed away 15 years later. And in his death, Alison started the Joshua Frase Foundation and an equipment exchange program."That’s the first family we have in Ecuador because normally the children there with this kind of diseases, unfortunately they don’t survive because there is not equipment," said Bilbao. "It’s very, very hard for them to go home so there’s little that they can do for them."Bilbao used to live in Ecuador. Now, she’s in Germany. She started CNM – Together Strong!, an association that helps families with centronuclear myopathies in Germany after her son was born with Myotubular Myopathy. Wilson’s parents got ahold of her after finding information online in Spanish — asking for help finding a ventilator so they could bring Wilson home."She was very desperate because she thought she was going to be at the hospital her whole life," Bilbao said, translating for Wilson's mom.Bilbao reached out to Frase to see if there was anything she could do to help."I was scrambling making posts on our private groups looking for the equipment to piecemeal this ventilator together," said Frase. "I knew I had a ventilator from, unfortunately, a child, actually a young man, that had passed this year, and I reached out to that mom, and she said absolutely you can have it."The ventilator came from a family in Utah, the plug, connectors, and other parts from another family in Utah, and the humidifier from a family in Texas. They were shipped to Bilbao’s brother who still lives in Ecuador to take to the family."We couldn’t ship it to the hospital because they were feeling that it’s going to get lost at the hospital. Then where they live there’s no post office because they don’t live in the city they live outside the city, it’s very hard for the post to get packages to them," said Bilbao.For Wilson’s parents, this gift is more than just a medical device."They felt really like they could breathe again. So it was not only a breath for their child, but a breath for them because they didn’t know what to do. And to know that somebody was going to help, it was very peaceful," said Bilbao. 3107

as their home burned down.Sunday night, Valerie and Alex Bujack were sleeping when their 14-year-old son Carter burst into their room, alerting them to the growing fire inside their home."I think Carter saved our family last night," Valerie Bujack said. "He woke up, knew something was wrong, smelled something, ran downstairs and got my daughter — his little sister — and they both came running upstairs because at that point smoke had started coming into the house."Kansas City, Missouri, firefighters responded to a call around 10:50 p.m. for what would become a two-alarm fire.While Bujack and her two children escaped out the back door, her husband, Alex, went back upstairs to get the family dog, only to throw him down the stairs before crawling his way out of the fully engulfed home. By then, both cars were exploding."They were just screaming. I mean you can hear my daughter on the Ring doorbell. I mean, she was just screaming, 'Get out, get out,'" Valerie Bujack said. 983

With only five days left until early voting begins in California’s top-two primary for the state's 49th Congressional district, a new SurveyUSA poll shows who is leading the race for Darrell Issa’s seat.According to the data, 16 percent of those surveyed support Republican Rocky Chavez with 12 percent saying they support Democrat Doug Applegate.In a poll conducted by SurveyUSA two months ago, Applegate was in first place with 18 percent of people saying they supported the Democratic candidate and 17 percent saying they support Chavez.When asked “Which one of the following issues will be most important in determining how you vote in this election,” 25 percent of people surveyed said the job the President is doing.Meanwhile, when asked whether or not they approve of the job the President is doing, 49 percent say they disapprove while 46 percent say they approve.Those surveyed were also asked whether or not they approve or disapprove of the job Darrell Issa is doing. 46 percent said they disapprove while 42 percent say they approve.Data for the survey, which involved more than 500 adults, was conducted April 6 through April 10. 1170

in Arizona over the weekend.Officers with the Prescott Police Department responded to a report of a disorderly female wearing a wedding dress who tried to assault an employee at a local business.Once police contacted a group of people at the location, officers say 32-year-old Eric Cordova became aggressive and refused to cooperate. He allegedly fought with the officer and both fell to the ground. During the struggle, several people that were with Cordova began to assault the officer and refused to obey commands, according to the department.Additional officers arrived on scene and eventually gained control of the group.Among them was 30-year-old Ashely Jordan, who was still wearing her wedding dress. Jordan and Cordova apparently had gotten married earlier in the day, police said.Two officers suffered minor injuries from the incident.The following people were arrested and booked into the Yavapai County Jail:Eric Cordova, 32-year-old Chino Valley resident – Aggravated assault on a law enforcement officer, resisting arrest and disorderly conduct.Ashely Jordan, 30-year-old Chino Valley resident – Aggravated assault on a law enforcement officer, resisting arrest, and disorderly conductDustin Trout, 31-year-old Tempe resident – Aggravated assault on a law enforcement officer, disorderly conduct, obstruction of justiceAmos Puckett, 25-year-old Nevada resident – Obstruction of justice and disorderly conductPolice say two other men were also cited and released from the scene for charges of disorderly conduct.This story was originally published by KNXV. 1571

is known for preaching forgiveness, one particular incident drew a rare moment of ire from him on Tuesday.At least one of the state's 39 new confirmed cases of COVID-19 Tuesday has been attributed to a "coronavirus party," Beshear said Tuesday. The governor said that a person who would later test positive had exposed themselves to the virus when they attended the gathering with a group of people between the ages of 20 and 30."This is one that makes me mad, and it should make you mad. Ultimately, the power of forgiveness, we should forgive that person, but no more of these statewide," Beshear said.Beshear has already ordered that "non-essential businesses" in the state should close for the time being. He's also reminded Kentuckians that all small gatherings should be avoided in order to prevent the spread of the virus.This story was originally published by Melissa Ratliff on 889

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