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A Denver family is trying to raise million in order to cure their son with a rare genetic disease. Doctors told Amber Freed that her 2-year-old son is one of 34 people in the world to have this rare neurological genetic disease. “The disease is so rare, it doesn’t even have a name,” Freed said. “It’s called SLC6A1, because that is the gene that it effects.” The disease causes Maxwell to have trouble moving and communicating, and soon it will only get worse. “The most debilitating part of the disease will begin between the ages of 3 and 4,” Freed said. “So, we are in a fight against time.”Maxwell has a twin sister named Riley. “I noticed early on that Maxwell wasn’t progressing as much as Riley,” Freed said. “I noticed he couldn’t use his hands. The doctors told me that every baby can use their hands. That’s when I realized there was something wrong with him.”After multiple visits to the doctor, Freed was able to find a genetic specialist to give Maxwell a diagnosis. “He looked at me and said, ‘Something is very wrong with your son. I don’t know if he’s going to live,’” Freed said. “My soul was just crushed. It was a sadness I didn’t even know existed on earth. You never think something like this could happen. I left my career, and I had no other choice but to create my own miracle and to find a treatment forward to help Maxwell and all those others like him.” Freed searched for scientists trying to create a cure, which she found at the University of Texas Southwestern Medical Center in Dallas. “We’re working with diseases where kids are born with a defective gene,” said Steven Gray, an associate professor at UTSW in pediatrics. “Our approach is to replace that gene to fix the condition at the level of their DNA. We’re taking the DNA that those patients are missing and packaging that into a virus and use that virus as a molecular delivery truck to carry those genes back in their body and fix their DNA.” “It’s a rare disease, no one has ever heard of it,” Freed said. “But one rare disease messed with the wrong mother.” Freed said she has raised million to help with research for the cure and will need an additional million, in order to let Maxwell and many others continue to enjoy life. “I want Maxwell to have every opportunity that children should have in this life,” Freed said. “When he is having a good day, I just try and soak him in as much as I can. We don’t take anything for granted in this house.” If you want to help donate for the cure, you can do so by visiting 2535

WASHINGTON -- Aileen is a dreamer – in other words, an immigrant who entered the United States illegally with her parents many years ago. “We came to the United States when I was about one year old. I was a little baby so when I say this is home, it is home for me,” Aileen said. Aileen says her family was trying to escape violence in Mexico. “They just wanted to make sure that I grew up in an environment that would help me thrive, and their decision was the United States,” Aileen said. Graduating second in her high school class, Aileen says she’s been able to experience opportunity her parents were never afforded. Now she hopes to help others, so she’s studying to become a mental health counselor. “I mean just waking up every day in a country that doesn’t want you here takes its toll,” Aileen said. In the Immigration Services office, she’s already using her education and expertise as a student employee. “A lot of the times students come in just wanting to vent,” Aileen said. Right now, Aileen and other DACA recipients say they’re experiencing a lot of anxiety as the Supreme Court deliberates on their fate. DACA – which stands for Deferred Action for Childhood Arrivals – is an immigration policy that was established during the Obama Administration. Applicants who don’t have a serious criminal history can live and work legally in the U.S. for renewable two-year periods. However, the Trump Administration has been criticizing it for years, saying it’s unlawful. And now the Supreme Court is considering whether or not the program should continue. “It’s important to know that it’s never 100% known what the Supreme Court is going to decide,” attorney Jerry Lopez said. DACA recipients have been meeting with immigration attorneys trying to understand the impact the Supreme Court’s decision could have on their lives. Although a final decision isn’t expected until late spring or early summer of 2020. “The Supreme Court heard arguments in the case challenging the ability of President Trump to end DACA,” attorney David Fine said. David Fine is on the general counsel at MSU Denver. He’s been keeping a close eye on the Supreme Court proceedings. “Based on briefings I’ve received and the reports about oral argument that I’ve seen, my guess is the Supreme Court likely will uphold President Trump’s ability to end DACA, but the basis of that decision will be important,” Fine said. He says depending on what the court decides, current DACA students might be able to keep their status until their two years are up. Or, their status and protection could end immediately. “Technically yes, a DACA recipient could be deported after the program has ended,” Fine said. As the country waits for the Supreme Court’s decision, dreamers are trying to hold onto hope. If DACA is taken away, there’s still a chance congress could pass the DREAM Act, which would actually give dreamers a path to citizenship – something DACA can’t do. Aileen says she knows where she belongs, and she’s optimistic she will eventually get the documentation so many take for granted.“I’ve grown into the person I am now by being here in America, and I can’t even imagine like being in another country that doesn’t necessarily feel like home anymore,” Aileen said. 3269

"It’s an 800-number; the phones are staffed by experts."Fans of The West Wing are quite familiar with the famous scene when President Bartlet was surprised that there is an 800-hotline to ask questions about how to prepare a turkey. Decades later, the Turkey Talk Line has evolved into more than a hotline. The hotline still exists, but there are other ways to get your critical turkey questions answered by experts. Here are the ways to get help:Butterball Skill for Amazon Alexa: Users can simply say, “Alexa, ask Butterball…” to enable the skill. Once enabled, just ask the Butterball skill your cooking questions and hear trusted Talk-Line experts share answers. Users can even watch how-to videos on compatible Alexa-enabled devices (Echo Show, Echo Spot and Amazon Fire TV).Text (844-877-3456): With nearly one in three first-time cooks saying they’d text the Butterball Turkey Talk-Line for cooking help, it only makes sense that, for the fourth year in a row, the Turkey Talk-Line offers text support in the weeks leading up to Thanksgiving. 1-800-BUTTERBALL (1-800-288-8372): Turkey Talk-Line experts will be available this season through Dec. 24, 2019, to answer questions and assist all holiday cooks.How-To Videos: Need a visual guide? Check out our fun and helpful instructional videos at 1314

#trafficalert SR160 is closed in both directions due to heavy snowfall. There are multiple vehicles off the roadway. NDOT is plowing at this time but it’s unknown when and if the SR160 will reopen. Check back for updates. #snow #roadclosures #drivesafenv #nhpsocomm— NHP Southern Command (@NHPSouthernComm) February 21, 2019 336

.@JustinTrudeau, @EmmanuelMacron, @BorisJohnson and other VIPs shared a few words at a Buckingham Palace reception Tuesday. No one mentions @realDonaldTrump by name, but they seem to be discussing his lengthy impromptu press conferences from earlier in the day. (Video: Host Pool) pic.twitter.com/dVgj48rpOP— Power & Politics (@PnPCBC) December 3, 2019 368