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A Denver family is trying to raise million in order to cure their son with a rare genetic disease. Doctors told Amber Freed that her 2-year-old son is one of 34 people in the world to have this rare neurological genetic disease. “The disease is so rare, it doesn’t even have a name,” Freed said. “It’s called SLC6A1, because that is the gene that it effects.” The disease causes Maxwell to have trouble moving and communicating, and soon it will only get worse. “The most debilitating part of the disease will begin between the ages of 3 and 4,” Freed said. “So, we are in a fight against time.”Maxwell has a twin sister named Riley. “I noticed early on that Maxwell wasn’t progressing as much as Riley,” Freed said. “I noticed he couldn’t use his hands. The doctors told me that every baby can use their hands. That’s when I realized there was something wrong with him.”After multiple visits to the doctor, Freed was able to find a genetic specialist to give Maxwell a diagnosis. “He looked at me and said, ‘Something is very wrong with your son. I don’t know if he’s going to live,’” Freed said. “My soul was just crushed. It was a sadness I didn’t even know existed on earth. You never think something like this could happen. I left my career, and I had no other choice but to create my own miracle and to find a treatment forward to help Maxwell and all those others like him.” Freed searched for scientists trying to create a cure, which she found at the University of Texas Southwestern Medical Center in Dallas. “We’re working with diseases where kids are born with a defective gene,” said Steven Gray, an associate professor at UTSW in pediatrics. “Our approach is to replace that gene to fix the condition at the level of their DNA. We’re taking the DNA that those patients are missing and packaging that into a virus and use that virus as a molecular delivery truck to carry those genes back in their body and fix their DNA.” “It’s a rare disease, no one has ever heard of it,” Freed said. “But one rare disease messed with the wrong mother.” Freed said she has raised million to help with research for the cure and will need an additional million, in order to let Maxwell and many others continue to enjoy life. “I want Maxwell to have every opportunity that children should have in this life,” Freed said. “When he is having a good day, I just try and soak him in as much as I can. We don’t take anything for granted in this house.” If you want to help donate for the cure, you can do so by visiting 2535

A 7-month-old baby in Ohio was hospitalized earlier this week with a blood alcohol level three times the limit of what an adult could drive with after she was left with a family member while her mother was working, according to a Cleveland police report.On Sunday, Cleveland police responded to University Hospitals of Cleveland Medical Center when a woman arrived with an infant who was unresponsive and limp, the report states.Hospital workers did a drug panel and then administered naloxone, believing the child may have overdosed, the report stated. Test results later indicated that the girl had a BAC of 0.25, which is over three times the legal limit for an adult behind the wheel.The mother told police that she left the child with a family member while she went to work. When the mother picked up her daughter, she noticed that the baby “was very tired and not acting herself” and she was getting worse.Police were told a family member might have put liquor in a bottle to get the child to stop crying and fall asleep, according to the report.Cleveland police detectives are investigating the case. 1119

A disaster relief bill was prevented from advancing in the US House of Representatives on Friday after Republican Rep. Chip Roy of Texas objected to passing the bill, meaning 187

A 30-year-old Honduran man died in ICE custody Sunday in a hospital in Humble, Texas, the agency said.Yimi Alexis Balderramos-Torres entered ICE custody on June 6 and less than two weeks later was transferred to the Houston Contract Detention Facility in Houston, Texas.On June 30, he was found unresponsive in his dormitory and attempts to revive him were unsuccessful, ICE said.Balderramos-Torres is the sixth detainee to die in ICE custody since October 1, 2018, the agency said. He is at least the 11th person to die in US custody since September.Balderramos-Torres entered the US illegally on May 27 and was placed in ICE custody on June 6 after a "routine traffic stop" with local law enforcement, ICE said.He had previously tried to enter the country ten days earlier and was returned to Mexico after encountering Border Patrol agents in El Paso, Texas, ICE said.Balderramos-Torres also tried to enter the US in August 2013. He was removed to Honduras that same month, according to the agency."Consistent with the agency's protocols, the appropriate state health and local law enforcement agencies have been notified about this death, as have the Department of Homeland Security's Office of Inspector General, and ICE's Office of Professional Responsibility," ICE said.The Consulate of Honduras in Houston has also been notified and Honduran consular officials have notified Balderramos-Torres' next of kin, the agency said.Other detainees to die in ICE custody since November include a 1506

A 10-year-old migrant child died while in the care of the Department of Health and Human Services' Office of Refugee Resettlement in September of last year, according to department spokesman Mark Weber.The girl, whose death was not reported publicly for nearly eight months, is now the sixth migrant child known to have recently died after journeying to the US and being apprehended by federal authorities. Her death predates the five children known to have died.In a statement, Weber said the 10-year-old girl entered the office's care in San Antonio in March 2018. She had a history of congenital heart defects.He said the child had surgery complications that left her in a comatose state. She was transported to a nursing facility in Phoenix and later transported to Children's Hospital in Omaha, Nebraska, where she died due to fever and respiratory distress on September 29, according to Weber.When asked by CNN why HHS did not announce the death of the 10-year-old girl at the time, Weber said they had prepared a statement at the time of her death but 1071