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A Colorado family is reaching out to the public for help in treating their 15-year-old son’s rare and debilitating skin condition.For seven years, Jaiden Rogers has suffered from stiff skin syndrome, a disease that causes the skin to harden.“When they said it was stiff skin syndrome – I was like oh good it’s only that,” said Natalie, Jaiden’s mother. “But the doctor said, ‘oh no I don’t think you understand.’ They said his skin would turn to stone. Within a month, he was in a wheelchair. It spread so fast. Within just a few months, he was starting to get it everywhere.”The condition has caused his skin to gradually tighten and harden, spreading from his legs to his hips and then to his stomach and neck.It started as a growth behind his knee. Jaiden has since lost mobility. The syndrome is a painful one as the skin thickens, limiting joint mobility. The syndrome is sparked by a mutation change, and an exact treatment is unknown.With no cure for the disease, Rogers and his family are now banking on an experimental procedure to save his life.“Doctors in Ireland are working with doctors in London. This is very expensive,” Natalie said. “The whole treatment is .5 million, because they actually have to make something for him, because he is the only child. It’s our only hope, and we are running out of time.”Natalie says her son is “turning to stone,” leaving him unable to walk and sometimes giving him trouble breathing. He sees six doctors and takes chemotherapy drugs to slow the disease’s progression.Jaiden is being treated at Children's Hospital in Aurora, Colorado. He may be the only one in the world being treated for what has been tabbed stiff skin syndrome. Altogether, there have only been a few dozen documented cases of the disease.Today, Jaiden remains confined to a wheelchair and takes chemotherapy to slow the progression. However, the condition has since spread to his stomach, chest, and neck, making it difficult for him to breathe.The family has started a GoFundMe page to raise money for the experimental treatment. The fund’s .5 million goal includes 5,000 for a medical flight to Europe. 2142

A line wrapped around the corner is a familiar sight to Pastor Bernard Taylor. Families in need know when they come to this Brooklyn church, they’ll be met with open arms and with a helping hand.“It means a lot, a whole lot for the community,” said Maureen Waters, who drives more than an hour to get food and supplies for herself and her grandkids.“We feed up to 100 and 5,000 people per year, and the number, quite naturally, is going to grow due to the pandemic,” said Pastor Taylor.More people need fresh food, school supplies, and clothing than ever before, and the Open Door Church of God in Christ provides it all.“We’re here rain, sun, hail, snowstorm, we are here,” said one volunteer. However, the pandemic is just as threatening to the church as it is to the community.“Some people have lost their homes. Some people can't make ends meet, and some people are really struggling,” said Taylor. “And if they're struggling, we struggle, because it's a trickle-down effect. If they're not receiving, then they can't give."Because of the pandemic, this church, like so many across the country, has shifted to online services. The empty pews often translate into near-empty collection baskets, leaving the church’s staff and its programs in a tough spot.“The payroll department has suffered because we don't have no streams of income to really satisfy or to cover that budget,” said the pastor. “It’s been many times that I’ve said, ‘Well I don't know what we're going to do.’”The business behind many churches in the United States is in for a long recovery.The Barna Group found 1 in 3 people who regularly attended church have stopped watching online services, leaving fewer involved parishioners ready to donate.A leader with Lifeway Research, a group studying churches, estimates 5% of churches will close permanently before the end of the year because of COVID-19. That number is five times higher than typical yearly closures.The question of a church’s survival made even heavier by the loss of life many churches have seen. For the Open Door Church of God in Christ, 19 church members have passed away during the pandemic.“We had some ushers that passed away. That was essential. Some nurses that passed away, and just so many members that I loved so much, and I miss each and every one of them,” said Taylor.Many of those church members also substantially supported the church’s finances. Their loss has caused such a ripple effect; Pastor Taylor had to step in to help his congregation.“I had to put in ,000 of my own personal money at one time just to see the payroll get taken care of, and I don't look for it back. I give it from my heart, and whatever I have to do, I give my last to make sure people have,” he said.To make sure this church could survive, a group called Churches Helping Churches also got involved, donating ,000 to this church and others across the nation that offer their community more than a house of worship.“I’m not working, so I’m glad I can come here,” said Maureen Waters. “I’m not hungry anymore, so it’s good.”Pastor Taylor fears if his church can’t serve the community, they will lose something greater than a place to gather."What's at stake is people lose hope, and we don't want people to lose hope," he said. "We want people to always know that they can depend on what they always depend on and that is the church being the church."Pastor Taylor he has a plan to make sure his business of helping others stays in business for good.“We have to make sure that we do three things. Number one, we have to adjust. We have to adapt, and then, we can overcome."Adapting to a life of coming together while staying apart to overcome the hunger in the community—in both body and soul.If you would like to help a local church that may be forced to close its doors, you can donate to Churches Helping Churches. 3861

A judge ruled Tuesday the City of Omaha must release a video showing the death of a TV crewman during a shootout at Wendy's in 2014.Bryce Dion, a sound mixer on a shoot at a Wendy's in Omaha for the reality TV show "Cops," was shot and killed Aug. 26, 2014, after Omaha Police returned fire on a man who shot a pellet gun at officers. Officers were called to the restaurant on a report of a robbery.In the video, someone could be heard repeatedly asking, "Bryce, are you alright?" He can be seen slumped against a glass wall in the vestibule of the restaurant.Dion was wearing a bulletproof vest, but was hit with a bullet under his armpit. The suspect, Cortez Washington, who was using an airsoft pellet gun, was also killed.In 2016, Dion's brother, Trevor Dion, filed a wrongful death lawsuit against the city, which had asked a Douglas County District judge to bar the release of the video, according to the Omaha World-Herald. The lawsuit says Dion was doing as instructed when he was hit by gunfire from an Omaha police officer.“Bryce positioned himself where told, when told, and acted in accord with police officer instructions. The perpetrator drew what appeared to be a pistol, but proved to be a pellet gun that simulated discharge. Police responded with live rounds of ammunition. They shot and killed the perpetrator. As they did so, they also shot and killed Bryce who was positioned as directed between at least one police officer who arrived at the scene belatedly, other police officers, and the perpetrator.”Brian Jorde, Dion's attorney, says he plans to use the video and other evidence at trial. The proceedings are expected to begin sometime after July."There's approximately 20 bullet holes just near the area of where Mr. Dion was alone so there's a significant amount of gunfire that was exchanged," Jorde said. "We think the public deserves to know what happens when their taxpayer dollars are at work with the police and otherwise. And I think it sheds light on exactly what happened and that Mr. Dion was caught in the line of the crossfire through no fault of his own."Omaha City Attorney Paul Kratz said the city played the video in court Tuesday to support its motion for the case to be dismissed."The city presented the video to the court in support of its motion for summary judgment, and we believe the video will support that motion," Kratz said when reached by phone Tuesday night. 2468

A Black man has filed a lawsuit against a gas station in Portland, Oregon claiming he was prohibited from buying gas because of the color of his skin, according to multiple media reports.Dominique DeWeese says he asked the attendant for a gallon of gas in a container back in July. According to the lawsuit, DeWeese says the attendant declined and allegedly implied he did not want to give DeWeese an opportunity to set fires.In Oregon, an attendant is required by law to pump gas, it is not self-service. “He asked if I was a Black Lives protester, rioter, kinda smirked and said ‘I’m not giving you any gas,’” DeWeese told KGW8 about the July incident.Portland has seen countless nights of demonstrations this year. They started in May, following the death of George Floyd at the hands of officers in Minneapolis.After the attendant declined to give DeWeese gas, he got out his cellphone and started recording. During the recording, the attendant tells DeWeese there are fires happening around Portland, “they get a can of gasoline and they start the fire,” the attendant says.“So, are you picking and choosing who to sell gasoline to?” DeWeese is heard asking on the video. The attendant said he was.DeWeese explains why he needs the gasoline, saying it's to put in the mole holes on his property that is just up the block from the gas station.The attendant says he will only give DeWeese gas if he can put it directly into a car or lawnmower, not a gas can.“I'm just doing my part to keep down the fires in town,” said the attendant.The attendant was reportedly let go after DeWeese’s video was shared widely on social media.DeWeese’s racial discrimination lawsuit was filed last week and is seeking 0,000. 1721

A federal judge in Florida has ruled that the state must give voters whose mismatched signatures disqualified their provisional and mail-in ballots until Saturday at 5 p.m. ET to correct those signature problems -- extending the deadline by two days.The ruling by U.S. District Court Judge Mark Walker comes in a suit brought by U.S. Sen. Bill Nelson's campaign and Democratic Party officials, who are looking to the courts to help them find votes to narrow the margin in the race with Republican challenger Gov. Rick Scott.The order affects approximately 5,000 voters who sent in ballots by mail or were forced to sign provisional ballots, but whose signatures did not match those on file with the state."There are dozens of reasons a signature mismatch may occur, even when the individual signing is in fact the voter. Disenfranchisement of approximately 5,000 voters based on signature mismatch is a substantial burden," Walker wrote in the order.It is not yet clear exactly how this ruling impacts the timetable to meet Thursday's 3 p.m. recount deadline, or whether there are enough ballots in question to potentially change the outcome of race.The ruling is narrower than the wider relief that Democrats were seeking -- to invalidate the signature-match requirement entirely. Florida law requires signatures on vote-by-mail and provisional ballots match the signatures on file for each voter. Attorneys for Nelson's re-election campaign argued that the signature-match rules violate the US Constitution and called for the judge to invalidate the law. Lawyers representing the state of Florida and the National Republican Senatorial Committee, along with others, argued that the law was valid and constitutional.The number of ballots in question is less than the margin of votes separating the closest race undergoing a recount. Scott led Nelson in the unofficial, pre-recount tally by more than 12,500 votes.The gubernatorial contest between Republican former Rep. Ron DeSantis and Democratic Tallahassee Mayor Andrew Gillum is also being recounted, but the margin is wider -- nearly 34,000 votes. Florida Democrats are aware that margin will probably not be overcome in a recount. Still, Gillum withdrew his election night concession over the weekend with a message that every vote should be counted.The-CNN-Wire 2327