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A Denver family is trying to raise million in order to cure their son with a rare genetic disease. Doctors told Amber Freed that her 2-year-old son is one of 34 people in the world to have this rare neurological genetic disease. “The disease is so rare, it doesn’t even have a name,” Freed said. “It’s called SLC6A1, because that is the gene that it effects.” The disease causes Maxwell to have trouble moving and communicating, and soon it will only get worse. “The most debilitating part of the disease will begin between the ages of 3 and 4,” Freed said. “So, we are in a fight against time.”Maxwell has a twin sister named Riley. “I noticed early on that Maxwell wasn’t progressing as much as Riley,” Freed said. “I noticed he couldn’t use his hands. The doctors told me that every baby can use their hands. That’s when I realized there was something wrong with him.”After multiple visits to the doctor, Freed was able to find a genetic specialist to give Maxwell a diagnosis. “He looked at me and said, ‘Something is very wrong with your son. I don’t know if he’s going to live,’” Freed said. “My soul was just crushed. It was a sadness I didn’t even know existed on earth. You never think something like this could happen. I left my career, and I had no other choice but to create my own miracle and to find a treatment forward to help Maxwell and all those others like him.” Freed searched for scientists trying to create a cure, which she found at the University of Texas Southwestern Medical Center in Dallas. “We’re working with diseases where kids are born with a defective gene,” said Steven Gray, an associate professor at UTSW in pediatrics. “Our approach is to replace that gene to fix the condition at the level of their DNA. We’re taking the DNA that those patients are missing and packaging that into a virus and use that virus as a molecular delivery truck to carry those genes back in their body and fix their DNA.” “It’s a rare disease, no one has ever heard of it,” Freed said. “But one rare disease messed with the wrong mother.” Freed said she has raised million to help with research for the cure and will need an additional million, in order to let Maxwell and many others continue to enjoy life. “I want Maxwell to have every opportunity that children should have in this life,” Freed said. “When he is having a good day, I just try and soak him in as much as I can. We don’t take anything for granted in this house.” If you want to help donate for the cure, you can do so by visiting 2535
(CNN) -- Vice President Mike Pence made an announced trip to Iraq to visit US troops ahead of Thanksgiving, landing in the country Saturday amid violent anti-government protests.Pence visited the Al Asad Air Force Base in western Iraq, where he was greeted by the US Ambassador to Iraq and several military officers.He received a classified briefing from the commanding officer on the base and spoke by phone with Iraqi Prime Minister Adil Abdul Mahdi.On the call, Pence told Mahdi that he traveled to Iraq in part to "extend gratitude to the men and women (of the US military) serving in your country," according to the TV travel pool with the vice president.Mike Pence and his wife Karen Pence later served the troops a Thanksgiving lunch, with the Vice President serving turkey and Mrs. Pence handing out yams.As service members came up to them, the Pences asked each where they were from and thanked them for their service.Vice President Pence then delivered remarks to about 150 service members in a hanger. "The President and your Vice President and the American people are behind you 100%," Pence said, according to the TV travel pool.Pence told the service members that the Trump administration was "fighting to secure another pay raise for the men and women in the military," but added "we need Congress to do their jobs," the TV travel pool reported."Congress should have finished their work months ago but you know that partisan politics and endless investigations have slowed things down," Pence said, according to the pool, referring to the House impeachment proceedings into President Donald Trump and Ukraine.Pence also mentioned the 1661

@ProsecutorSmith calls Kozlowski’s sentence “a slap in the face” and says his office has already started the appeal process. @wxyzdetroit pic.twitter.com/agYHV7CKUo— Anu Prakash (@WXYZPrakash) August 1, 2019 219
A container filled with 90,000 bottles of vodka believed to be for sanctions-hit North Korea has been seized by Dutch customs agents, officials said Tuesday.Three-thousand cases of the spirit were found by officers at the port of Rotterdam aboard a ship owned by China's Cosco Shipping, said Roul Velleman, a spokesman for the Dutch customs agency.Velleman said officers decided to check the container based on a "risk profile" provided by the Foreign Ministry."We follow a risk profile and we had information that this container could be carrying something," Velleman said. "And it was right. It was vodka -- destination China, probably to go to North Korea."North Korea has been slapped with a number of international sanctions, which include a ban on the import of certain luxury goods, for its continued ballistic missile testing and violations of UN resolutions.Those sanctions were the reason behind this particular seizure -- which was ordered by the Dutch minister for trade, Sigrid Kaag -- her spokesman said."The Security Council of the United Nations has imposed clear sanctions on North Korea, so it is important to enforce those sanctions," Kaag said, according to her spokesman, Jeroen van Dommelen."The sanctions also govern the import of luxury goods and so customs was completely justified in unloading that container."China, which is often highlighted as 1385
"Saturday Night Live" has fired one of its most recent hires, Shane Gillis, just days after videos of comedian making bigoted comments came to light."After talking with Shane Gillis, we have decided that he will not be joining 'SNL,'" an 'SNL' spokesperson on behalf of Lorne Michaels said in a statement to CNN. "We want 'SNL' to have a variety of voices and points of view within the show, and we hired Shane on the strength of his talent as comedian and his impressive audition for 'SNL.' We were not aware of his prior remarks that have surfaced over the past few days. The language he used is offensive, hurtful and unacceptable. We are sorry that we did not see these clips earlier, and that our vetting process was not up to our standard." 758
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