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With ventilators hard to find amid the spread of the coronavirus, families across the world worked together to find a ventilator for a child in Ecuador. Wilson, at age 18 months, is at an age one half of children with Centronuclear Myopathy don't get to see."At the beginning, they didn’t get any diagnosis, it was 5 months until they got the diagnosis. The first months it was very uncertain what was going to happen. They had no idea and because of the disease is very, very uncommon and rare, the doctor had no idea," said Jen Bilbao, translator for the family."These children are born very weak, a majority of them do not breathe spontaneously on their own. They cannot eat orally, cannot sit up on their own," said Alison Frase, Joshua Frase Foundation cofounder.That means they need a ventilator, something that was in short supply here in the U.S. just a few weeks ago, but is nearly impossible to find in Ecuador. Frase's son, Joshua, was born with Myotubular Myopathy in 1995. He passed away 15 years later. And in his death, Alison started the Joshua Frase Foundation and an equipment exchange program."That’s the first family we have in Ecuador because normally the children there with this kind of diseases, unfortunately they don’t survive because there is not equipment," said Bilbao. "It’s very, very hard for them to go home so there’s little that they can do for them."Bilbao used to live in Ecuador. Now, she’s in Germany. She started CNM – Together Strong!, an association that helps families with centronuclear myopathies in Germany after her son was born with Myotubular Myopathy. Wilson’s parents got ahold of her after finding information online in Spanish — asking for help finding a ventilator so they could bring Wilson home."She was very desperate because she thought she was going to be at the hospital her whole life," Bilbao said, translating for Wilson's mom.Bilbao reached out to Frase to see if there was anything she could do to help."I was scrambling making posts on our private groups looking for the equipment to piecemeal this ventilator together," said Frase. "I knew I had a ventilator from, unfortunately, a child, actually a young man, that had passed this year, and I reached out to that mom, and she said absolutely you can have it."The ventilator came from a family in Utah, the plug, connectors, and other parts from another family in Utah, and the humidifier from a family in Texas. They were shipped to Bilbao’s brother who still lives in Ecuador to take to the family."We couldn’t ship it to the hospital because they were feeling that it’s going to get lost at the hospital. Then where they live there’s no post office because they don’t live in the city they live outside the city, it’s very hard for the post to get packages to them," said Bilbao.For Wilson’s parents, this gift is more than just a medical device."They felt really like they could breathe again. So it was not only a breath for their child, but a breath for them because they didn’t know what to do. And to know that somebody was going to help, it was very peaceful," said Bilbao. 3107
for allegedly abusing two students on his bus. Mesa police report that on Tuesday, Jamie Tellez, 50, was driving a bus for Mesa Public Schools in the area of Recker Road and University Drive. Police say there were two students left on the bus when a 10-year-old student threw trash toward a trash can at the front of the bus. Court records show that Tellez "abruptly stopped the bus in the middle of the street, causing the other 11-year-old child to fly forward, striking his head on the windshield. Police say the impact caused a large crack in the windshield. Tellez then allegedly grabbed the victim by his backpack and pushed him to the rear of the bus. He then cursed and threatened to beat the other student, police say. 730
WOODBRIDGE, Calif. (AP) — An 11-year-old Northern California boy died after shooting himself during a Zoom distance-learning class while his microphone and camera were off.The San Joaquin County Sheriff's Office says deputies were called to a home in Woodbridge Wednesday morning and found the boy with a self-inflicted head wound. He died at a hospital.Deputies told KOVR-TV that the boy's microphone and camera were off when he shot himself during a sixth-grade Zoom class.The Woodbridge Elementary School student's name and other details weren't immediately released.The school district is offering counseling and bereavement support to staff and students. 667
-- are supplemental police reports that classify Smollett as an "offender," police Sgt. Peter Edwards said.It wasn't immediately clear whether other documents would be released. Some names and addresses are redacted, but previous details that police released, as well as an unredacted mention of one of the brothers, make clear that the Osundairos are mentioned here. CNN has been unable to reach them.Smollett pleaded not guilty to the charges before they were dropped, and he has denied staging the attack. Here is some of what the documents show: 550
YUMA, Ariz. (AP) — The acting secretary of Homeland Security said he expected 25% fewer migrants to cross the border this month, as officials in Yuma unveiled their latest outdoor facility meant to detain children and families.The number of illegal crossings would still be too high, but it was a start, he said, crediting Mexico with a concentrated effort to stop Central Americans before they arrived even to Mexico — a push prompted by threats of tariffs by President Donald Trump.The president has seen numbers of migrants crossing the U.S.-Mexico border skyrocket under his term despite his hardline policies and tough-talk. More than 100,000 people, mostly families from Central America, have crossed the border each month over the past few months. Trump sees the monthly border numbers as a benchmark for success, and during previous months when he felt numbers were too high, he threatened to shut down the entire border.McAleenan dismissed the idea that a projected decrease in June was due in part to hot summer months, traditionally a time fewer people crossed."These initiatives are making an impact," he said.Meanwhile, facilities that house detained migrants are vastly overcrowded and advocates and attorneys have decried conditions inside. Border facilities are meant as temporary holding stations, built to hold a maximum of about 4,000, but have routinely held as many as 15,000.Teens and children, detained days or weeks by U.S. border authorities, described frigid cells where flu-stricken youngsters in dirty clothes ran fevers, vomited and cried with no idea when they would be getting out, according to court documents in a case that governs how children are cared for in government custody.Meanwhile, Congress sent President Donald Trump a .6 billion package on Thursday that bolsters care for the tens of thousands of arrivals taken into custody. McAleenan praised the move, but also cautioned there was much more work to do.In Yuma, construction on the new 500-person tent facility began about two weeks ago. Journalists were expected to get a tour of the facility before migrants are placed there.McAleenan also spoke of the tragic image of a father and his toddler, drowned on the banks of the Rio Grande."The situation should not be acceptable to any of us," he said of the deaths. "It should galvanize action and real debate ... And yet here in Washington we have collectively failed to end this crisis. This is not on the men and women of DHS. They deserve better and so do the families of children."___Long reported from Washington. 2574