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Axel Dennis and his family have faced challenging times in his short life after being diagnosed with a rare disease at 5 weeks old. Alex was diagnosed with Spinal Muscular Atrophy Type 1 which is a serious and deadly condition. According to U.S Department of Health and Human Services, symptoms include muscle weakness, lack of motor development and poor muscle tone. Children diagnosed with SMA1 generally are unable to sit up or stand. Left untreated, the disease is typically fatal by age 2. In the past, this diagnosis would have been considered terminal. But a recently developed treatment has made it possible for children to survive and live a normal life. The drug is called Spinraza and it was approved by the FDA in 2016. It allows children to reach and maintain age appropriate developmental milestones, including sitting, crawling, and walking. The drawback is it only slows the progression of the disease. It also has to be injected into the spine every fourth months under anesthesia. Health and Human Services also said that some babies do not respond to the treatment. A second drug was released this year called Zolgensma, which would give Axel likely the best chance of living a normal life. The drug uses gene therapy IV fusion that replaces a missing gene. But the revolutionary drug has a cost of .1 million.According to an article by 1370
BUFFALO, N.Y. — After multiple investigations by Scripps station WKBW in Buffalo that revealed mishandling of sexual abuse cases by Buffalo Bishop Richard J. Malone, the scandal-plagued shepherd is 210
Authorities in Oregon believe they have found the remains of Charles Levin, an actor who appeared in television series like "Seinfeld" and "LA Law." He was 70 years old, according to 195
Authorities say a Florida deputy fatally shot an armed man several hours after a stolen pickup truck he was riding in ran over a police detective in another county. Polk County Sheriff Grady Judd says 31-year-old Aaron Phillips was killed Wednesday while fighting with a deputy at a mobile home park near Mulberry. A woman who had been with Phillips, 36-year-old April Thompson, was hospitalized with two gunshot wounds. In neighboring Hillsborough County on Wednesday morning, a Plant City detective was run over while trying to approach Phillips and Thompson's truck. Judd says nearby law enforcement agencies were told about the pair after they carjacked another truck. 684
Buck Henry, an actor, director, comedian and writer who was nominated for two Academy Awards, died on Wednesday at the age of 89, 142