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A Colorado family is reaching out to the public for help in treating their 15-year-old son’s rare and debilitating skin condition.For seven years, Jaiden Rogers has suffered from stiff skin syndrome, a disease that causes the skin to harden.“When they said it was stiff skin syndrome – I was like oh good it’s only that,” said Natalie, Jaiden’s mother. “But the doctor said, ‘oh no I don’t think you understand.’ They said his skin would turn to stone. Within a month, he was in a wheelchair. It spread so fast. Within just a few months, he was starting to get it everywhere.”The condition has caused his skin to gradually tighten and harden, spreading from his legs to his hips and then to his stomach and neck.It started as a growth behind his knee. Jaiden has since lost mobility. The syndrome is a painful one as the skin thickens, limiting joint mobility. The syndrome is sparked by a mutation change, and an exact treatment is unknown.With no cure for the disease, Rogers and his family are now banking on an experimental procedure to save his life.“Doctors in Ireland are working with doctors in London. This is very expensive,” Natalie said. “The whole treatment is .5 million, because they actually have to make something for him, because he is the only child. It’s our only hope, and we are running out of time.”Natalie says her son is “turning to stone,” leaving him unable to walk and sometimes giving him trouble breathing. He sees six doctors and takes chemotherapy drugs to slow the disease’s progression.Jaiden is being treated at Children's Hospital in Aurora, Colorado. He may be the only one in the world being treated for what has been tabbed stiff skin syndrome. Altogether, there have only been a few dozen documented cases of the disease.Today, Jaiden remains confined to a wheelchair and takes chemotherapy to slow the progression. However, the condition has since spread to his stomach, chest, and neck, making it difficult for him to breathe.The family has started a GoFundMe page to raise money for the experimental treatment. The fund’s .5 million goal includes 5,000 for a medical flight to Europe. 2142

A majority of voters in Puerto Rico approved a non-binding referendum that supports elevating the island territory to statehood status.The referendum narrowly passed by a 52-48 margin.The question was not the first time voters weighed in on Puerto Rico statehood. Most recently, 97% of voters approved statehood in 2017, but the vote was boycotted by opposition parties.Several previous referenda were not a straight up statehood vote.Given Puerto Rico’s status, the territory does not vote on US senators or representatives, although the territory elects a non-voting member who can serve on committees. Puerto Rico also does not get a vote in the presidential general election, but the territory does get a say in the Democratic and Republican primaries.While Democrats would likely welcome the opportunity to make Puerto Rico a state, the likelihood of there being enough political support for Puerto Rico to be the 51st state is still doubtful. 956

A body found in the water near Levi's Stadium in Santa Clara, California, was identified Tuesday as a San Francisco 49ers fan who went missing during a Nov. 12 Monday Night football game, officials said.The Santa Clara County Medical Examiner positively identified the body found Saturday by duck hunters as Ian Powers, 32, of Spokane, Washington.The body was found in low-tide water approximately one mile north of the Alviso Marina boat ramp. The boat ramp is almost three miles north of the stadium.The cause of death has been ruled as accidental drowning.Powers’ girlfriend told police he left his seat to use the bathroom and never returned.Surveillance video showed him leaving the stadium and walking out of the venue. 733

A lot of people depend on their service animals to help take care of them. But one Las Vegas woman said when her dog Luna began having trouble walking, she knew she had to go the extra mile to take care of her. Luna is a 10-year-old German Shepherd, emotional support animal and a lifesaver. Her owner is Sharlene Branche."She has saved my life so many times. Literally gotten me out of bed because of my breathing problems," Branche said.So when Branche noticed Luna wobbling as she walked, she became worried. "She has never whimpered. She has never cried, " Branche said. "She has never shown any kind of pain, but it's my turn, our turn for me and my husband to help her."X-rays found no issues with Luna's bones, spine or hips. Yet the problems with her walk persisted. Sharlene reached out to Urban Underdog Las Vegas, a nonprofit group for help. They shared Luna's story on their Facebook page. Cynthia Miyamoto said the response was overwhelming."So we posted it, and in less than about eight hours somebody had contacted us," Miyamoto said.Someone donated a brand new doggie wheelchair for Luna to help her get around better. Branche said she is overjoyed. "She's going to be able to go on her walks and her runs again. And I can't even thank this person enough!" Branche said. "So when we are fitting her with the harness and putting on her I literally started crying because I was so happy and excited," Miyamoto said after the delivery.  1517

A former refugee is using his life experience and brilliant mind to inspire world peace through video games. He’s using a groundbreaking approach that puts the players in a position to save real lives.Lual Mayen is proud of where he came from.“My name is Lual Mayen and I’m from South Sudan,” he said as we started our interview, explaining how his life started. “I was born on the way as my family was actually fleeing war there and ended up in Northern Uganda.”He spent his first two decades on Earth in an environment most couldn’t imagine.“I've been in a refugee camp for like 22 years of my life,” Mayen explains. “That’s where I spent all my childhood in a refugee camp.”Mayen is also proud of where he’s going. He lives in Washington, D.C. now and is focused on helping to chip away at the global refugee crisis. The UN Refugee Agency estimates it affects 79.5 million people.“I'm here to create more opportunities for refugees,” he said, without giving it a second thought.Mayen is accomplishing his goal through video games. He’s the founder, CEO and self-taught developer for his company, Junub Games. And he’s about to launch a new game that’s all about peace.It’s called Salaam, an Arabic word that means peace. We asked Mayen to describe it.“So, Salaam is an Arabic word that means peace,” he starts. “[It’s] a high-tension video game that puts the player in the shoes of a refugee who’s fleeing a country.”In Salaam, the goal is to get your character from a war-torn country to a peaceful space safely. The character faces real-life challenges like hunger and thirst along the way.For Mayen, the project is no game.“That is going to bring the global communities together virtually,” he said.He designed Salaam to include players in the game in a way that’s never been done before.“You are like interacting with a virtual character and you're also interacting with somebody in a refugee camp.”Mayen is teaming up with a nonprofit to give players a hand in helping him change the world. A portion of in-app purchases will go to help refugees.“When you buy food in the game, you actually bring somebody in a refugee camp food,” he explained. “When you buy water in the game, you’re giving them water. When you buy medicine, you are buying them medicine.”He sees the idea as more than a fun way to get players more involved in games. He sees it as a way to make the world a better place.“And that's why I personally believe that we can use our experiences to create a sustainable future for other people.”Mayen credits one person for his success today – his mother.“I'm happy that I have somebody like her in my life,” he said, smiling.He tells the story of how his mom quietly saved money for years to get him his first computer.“And one day, she was like ‘Lual here is 0, you can use it to buy a computer.’ And that moment just changed my life.”Mayen says none of his work will top what she did for him and his siblings, who today, all live in Canada.“I'm proud that no matter what I'm going to do, it will never overshadow the work that she has done in my life.”Today, Mayen stays focused on addressing the refugee crisis he says isn’t going away.“People are being displaced because of war. People are being displaced because of climate change.”He hopes Salaam helps create a solution.“You can be you as a player and you still help people,” he said.And he hopes it gives refugees new opportunity and helps more people realize that refugees are people.“We can be programmers. We can go to the moon if we want. We can be like anything we all want to,” Mayen said through a smile. “If we have opportunity. It’s hope.” 3638