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The doctors aren't the only ones who are critical of the CDC's handling of the devastating disease.On Saturday, five families whose children have AFM gathered at the home of 10-year-old McKenzie Andersen in Albany, Oregon, to celebrate an early Halloween. On the actual holiday, McKenzie will be having surgery related to a complication of the disease.McKenzie was a happy, healthy, hip-hop-dancing first-grader when she developed pneumonia in 2014. Within four days, she was paralyzed below the neck.Today, she can move only her left hand and her feet and toes. She spends nearly all her time in bed, a ventilator breathing for her.As the families munched on Halloween treats at McKenzie's home, they talked about their disappointment in the CDC. The mothers say the federal agency should be doing a better job letting emergency rooms know about the signs of AFM.The women, who help run a Facebook group for hundreds of parents whose children have the disease, say that even today, six years after the first set of cases, emergency rooms still frequently send children home when they have signs of AFM, attributing the paralysis to a pinched nerve or some other cause.LeMay Axton said it happened to her granddaughter, Cambria Tate, when she was 2 years old. Now 4, she gets around in a wheelchair, or by scooting around on the floor.She said she'll always wonder whether Cambria would have more mobility if her AFM had been caught sooner. She wonders why it wasn't, given that Cambria got sick in 2016, four years after the first cluster of cases of AFM."When I look back it now, I think to myself, 'why didn't they know? Why didn't they realize? Why didn't they catch something like that?' " she said.She said the CDC should be reaching out to hospitals with specific instructions about the signs of AFM, such as weak limbs and a drooping face, and what to do about it."Come on, it's 2018. They need to get busy," she said.Although the CDC hasn't reached out to hospitals directly about AFM, it has reached out to state health departments and other agencies.In 2014, in 2016 and again this year, the CDC provided state health departments with an example of a letter they could send to health care providers describing the symptoms of AFM.The federal agency also sent information about AFM to more than 6,000 professionals at local, state and federal agencies. State employees were also given directions on how to send laboratory specimens to the CDC for testing.The parents in the Facebook group also criticized the CDC for being out of touch with them and other families affected by AFM.The parents say they've gathered data on hundreds of children with the disease and have offered to share it with the CDC, but when they've reached out to the agency, they receive a form letter thanking them for their interest.Messonnier, the CDC doctor, said parents' voices are "really important.""For other diseases that I work on, we definitely engage directly with the advocacy groups," she said. "I guess I didn't know about this particular Facebook group." 3053

The fatality rate in paragliding is one in 100,000. This is the same statistic as automobile fatalities in the US. But because there are much fewer paragliders, this may seem much rarer. Torrey Pines Gilderport staff may host a memorial fly-in for the two men. But they have not yet decided on a date. 302

The Caltrans project aims to link the new state Route 11 and connections to state Routes 125 and 905, with the connection road leading to the new Otay Mesa East Port of Entry. 175

The American Civil Liberties Union of Connecticut, which demanded answers after Barone's traffic stop incident investigation in July, released a statement, calling the firing of the officer "good news.""It is good news that Barone is no longer employed by Hartford, but the department never should have promoted him in the first place. Hartford's overall lack of police accountability guarantees a bad system, not just bad apples," the statement read. 456

The city says food service ware, coolers, ice chests and pool or beach toys made of polystyrene foam will be prohibited at city facilities.The ordinance’s next phase is scheduled to take effect May 24. In that phase, egg cartons, food service ware and food trays made or partly made from Styrofoam will not be allowed to be sold or distributed.The following items are also prohibited as part of the May phase: Bowls, plates, trays, cups, lids and other similar items designed for one-time use for prepared foods, including containers for dine-in, takeout food and leftovers.Businesses or restaurants with a gross annual income of less than 0,000 are considered exempt from the ordinance until Feb. 23, 2020. Those businesses or restaurants can apply for waivers to address any issues.RELATED: 796