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Just heard news of the devastating reports from New Zealand Christchurch. I feel absolutely sickened having my name uttered by this person.My heart and thoughts go out to the victims, families and everyone affected by this tragedy.— ??ω?????? (@pewdiepie) March 15, 2019 282

KANSAS CITY — Maureen Boesen has always known cancer risk was high in her family."We're able to really track our history of breast cancer back to the late 1800s and early 1900s," Boesen said. "My grandmother actually passed away from ovarian cancer when she was 44. She had five sisters and none of them lived to the age of 50. Then, my mother was diagnosed with breast cancer when she was 32. We knew there was something going on and that it was a very young age."When Boesen and her two sisters were ages 3, 5 and 7, their mom was already receiving chemotherapy for stage 2 breast cancer. Because of the extensive family history, the girls were part of a study at a university in another part of the Midwest. Their mom was hoping to help the world better understand what was killing so many women. She was hoping to better her daughters' chances for survival."We were all tested in the same exact room," said Boesen's sister, Bridget Stillwell. "I can even remember what the room looked like." Because the girls were so young, and the health threat still likely years away, they wouldn't receive their DNA test results until they turned 18."We knew we were part of a study," Boesen said. "We knew our results were waiting for us, but we didn't know what they were."When asked if she found that wait frustrating, she said emphatically it was not."Quite the opposite. We felt empowered," she said.She didn't get the results right away. The sisters knew there was nothing they could likely do at age 18 even if their test results showed they'd inherited the BRCA gene mutation. The sisters all waited until they were around age 21. One sister was positive. One sister was negative. Boesen remembers meeting with the researcher to learn her results."We sat down and we had a conversation about what BRCA was and what it meant for my family," Boesen said. "It was a lengthy conversation, which made me very uncomfortable because why would a conversation that wasn't going to change my life last that long?"Eventually, the researcher told her she had inherited the gene mutation."It was just devastating because I knew what breast cancer and ovarian cancer can do to a family. You know, my first question out of my mouth was, 'Is there any chance this could be wrong?' The researcher said 'No.' "Boesen walked out of that meeting determined. She was going to make decisions to save her own life. She was going to have a bilateral prophylactic mastectomy. She would schedule a surgery to remove both breasts to prevent breast cancer."This was me doing what I was supposed to do and this was me being empowered and me being proactive and not waiting until I have a cancer diagnosis," Boesen said.She didn't want to feel like a ticking time bomb. She wanted to live.Boesen had the surgery to remove both breasts when she was just 23 years old. She went on to get married and have three children."I didn't get to breastfeed them. It was sad. I'm not brokenhearted or devastated about it, but it is sad to think I couldn't provide for my children like that," she said.At the time, she still believed she'd made the right decision because she was healthy.Once done having children, she knew there was another step that most people with the dangerous BRCA gene mutation have to consider."I knew that when I was done having children, I needed to have a complete hysterectomy," Boesen said.The BRCA gene mutation not only dramatically increases a woman's chance of developing breast cancer at a young age, it also significantly increases a woman's chance of ovarian cancer."The right thing to do and what the doctors say to do is have a complete hysterectomy by the age of 35 and I was in my early 30s," Boesen said.In 2018, she went to a hospital in Kansas City, Missouri, to start the process of preparing for her hysterectomy. Both her health care provider and her insurance company wanted a new DNA test. Everyone knew what the results would be, but they went through the motions to get the required confirmation she was positive for the deadly gene mutation which was so rampant in her family.The test results were supposed to be back in a few weeks, but it had been four and Boesen was starting to worry. Then, she got the call from the doctor."I was at work. And the first thing she said was, 'We need to talk', and my heart just sank," Boesen said. "She said, 'You're negative,' and I just started bawling."She was overwhelmed, confused and full of emotions."I was angry. I was regretful. I was happy. I was sad. I so desperately wanted to feel relief, 'Oh, thank God, this is the best day of my life,' but it wasn't," Boesen said. "It was just devastating."Boesen got another test to confirm the second test results. It also came back negative.She did not get the hysterectomy. There was no need now. There was no longer a threat that cancer was waiting to explode in her body. She now knew she had not inherited the BRCA gene mutation that had killed so many of her relatives.Dr. Jennifer Klemp of the University of Kansas Cancer Center has worked in the field of cancer genetics, specifically breast and female cancers, since 1997. She is the director of Cancer Survivorship and a cancer risk counselor. While she was not involved in Boesen's original research, she says she's not surprised."Twenty years ago, when we sent our first tests and BRCA 1 and 2 were the two genes we tested for, about 30-40 percent of the time we would get something called a 'variant of uncertain significance,' " Klemp said. "Basically, that meant we found a mutation or an error in the DNA, but we didn't know if that was associated with an increased risk of cancer. Today, using a reputable lab, that should be less than 1-2 percent."Klemp says things are changing rapidly in the field of genetic testing. If someone had a DNA test more than five years ago, they should consider having an updated test. She also says the at-home tests are good for finding out details about your ancestry, but they shouldn't be used to make major decisions about your health. For that, you'd want a health professional to order a commercial test through a certified, reputable lab. With more and more companies offering testing, and more medical professionals and patients interested in genetic testing for so many reasons, she says demand right now is outpacing supply."If you have 10 different labs doing testing, and you have every primary care, OB-GYN, oncology clinic, surgical clinic and any number of patients eligible for testing, it's a little bit of the wild west," Klemp said, adding there's no central repository for this patient and test information.As for Boesen, the university where the original research was done and the false positive originated offered to re-test her DNA. She is currently waiting on the results from what is now her fourth genetic test. She hopes it comes back negative, too, which is what the experts all expect. She believes, then, finally, she'll be able to move forward with her life. Boesen and her two sisters are writing a book about their experiences. Each of her sisters has a story to tell, too. Their book will be titled, " 7146

It's been over four months since Hurricane Michael slammed into the Florida Panhandle, but driving around some parts of Panama City, many would think it had just been four days since the storm made landfall. Especially if you saw Shelly Summers' backyard, which is now a tent community of 24 displaced strangers. “And we have more coming,” says Summers. Summers has been helping those whose homes were destroyed. "That's just what you're supposed to do,” she says. “How can you go home and shut your door and know that there are people sleeping in the woods? How can you be OK with that? That's not right." The tents have power, heat and even mattresses. Summers and her husband even built an extra shower. Summers and her husband won’t accept payment. “She won’t take it!” says one tent occupant Brittany Pitts. Instead, residents have found small ways to show their gratitude, like carving a fairy house into what was Summers’ favorite tree before the storm. But Pitts still can't help but think that no one should be living like this, especially this long after the storm. She feels the rest of the country has forgotten the victims of Hurricane Michael."You really see just how much people don't care,” Pitts says. Summers agrees, "I feel like the day after, we were forgotten about. It doesn't make me mad. It makes me sad, because that's not how it should be." TJ Dargan with FEMA’s Hurricane Michael Response Team says if residents feel forgotten, it’s through no fault of FEMA, which to date has contributed 6 million in rental assistance. “Well, FEMA is certainly focused here,” Dargan says. “We have a lot of people, and we're pouring a lot of money into this community. So no, FEMA certainly hasn't forgotten about this. The federal government hasn't forgotten about this.” But the fact that Congress has yet to fund any emergency relief for Hurricane Michael frustrates local residents, as well as local politicians.Until there’s more help, Summers believes the tents in her backyard will be her new normal for years to come, but it’s a challenge she says she'll gladly accept. 2108

In recent years, healing and meditation has become an important part of Janea Escobedo’s life.“It’s just very relaxing to be under the trees to watch the leaves, and hike around to see the wildlife. It’s, it’s very healing,” she says. Escobedo was diagnosed with inflammatory breast cancer.“In February of 2017, I was happy-go-lucky turned into a cancer patient with a very aggressive rare disease that I didn’t know what to do with,” she recalls. Dr. Radhika Acharya, the medical director of the UCHealth Cancer Center in Highlands Ranch, Colorado, has been assisting Escobedo in her cancer journey.“[Inflammatory breast cancer] makes up just about 0.2 to 0.5 percent of all breast cancers, so it’s very rare, and it involves the skin that overlies the breast,” Dr. Acharya says.She says inflammatory breast cancer is so rare, it’s a challenging cancer to diagnose. “I think what’s difficult is sometimes it gets underdiagnosed or not diagnosed correctly because it looks like mastitis, which is swelling of the breast from an infection, or cellulitis, which is swelling of the skin or infection of the skin," she explains. "And a lot of women can experience that after pregnancy or when they’re breastfeeding or just with trauma."As uncommon as it may be, Escobedo knew the symptoms from a news segment she had seen years prior. “Honestly didn’t feel sick, didn’t think anything was going on, but I had that itch,” Escobedo says.She thought that itch was simply dry skin. However, after a couple weeks, it was still itchy so Escobedo decided to visit the doctor. An MRI showed nothing, but a biopsy proved it was inflammatory breast cancer. “With inflammatory breast cancer, 9 times out of 10 there will be no lump,” Escobedo says.The potential for a lump is just one symptom out of many for the disease. Other possible symptoms include itchiness, swelling of the breast, dimpling or thickening of the skin (like the skin of an orange), a discolored or inverted nipple, or the breast can get warm. Considering it’s so difficult to discover, the cancer is often very advanced by the time it’s diagnosed. Escobedo says she had to go through super intense chemo, surgery and radiation. However, genetic testing helped guide doctors and Escobedo to make the right decisions for her body.“Genetic testing more and more is becoming part of the data points in considering a patients’ diagnosis and optimal treatment,” UCHealth Genetic counselor Kristina Markey says.Oncologists say if you think you could be experiencing any of these symptoms, you should see your doctor right away. “Be persistent, and don’t just sort of say ‘it will get better’. If it doesn’t get better, go see your doctor again,” Dr. Acharya says.Escobedo will have to undergo chemo every three weeks for the rest of her life. Some days, she says she can barely drag herself down the stairs, but in the end, she chooses to stay positive and keep going.“When I wake up in the morning and I’m alive, then I just need to live the day," Escobedo says. "And I have a strong faith in God, I have a very strong family bond, and I will be on chemo forever, but the good part is that forever may be much longer.”If you’d like to reach out to the journalist for this story, please email elizabeth.ruiz@scripps.com 3281

It was a chilly winter night in Greenville, South Carolina and Emerson and Maya were on Girl Scout duty selling cookies outside a store.At one point, a man approached the stand and bought seven boxes of cookies worth , and told them to keep the change, according to cookie manager Kayla Dillard.Then, he went back to the table and said: "Pack up all of your cookies. I'm taking them all so y'all can get out of this cold," Dillard said in a Facebook post. He spent 0 on cookies, she said."What an amazing soul. It was about 34 degrees outside that night and we were there for about two hours already before he came," Dillard told CNN."We all were shocked. The girls were very excited and thankful."Dillard said she does not know the good Samaritan. But his act of kindness surely earned him a place in the girls' hearts for a long time. 854