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发布时间: 2025-05-31 17:23:14北京青年报社官方账号
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A Denver family is trying to raise million in order to cure their son with a rare genetic disease. Doctors told Amber Freed that her 2-year-old son is one of 34 people in the world to have this rare neurological genetic disease. “The disease is so rare, it doesn’t even have a name,” Freed said. “It’s called SLC6A1, because that is the gene that it effects.” The disease causes Maxwell to have trouble moving and communicating, and soon it will only get worse. “The most debilitating part of the disease will begin between the ages of 3 and 4,” Freed said. “So, we are in a fight against time.”Maxwell has a twin sister named Riley. “I noticed early on that Maxwell wasn’t progressing as much as Riley,” Freed said. “I noticed he couldn’t use his hands. The doctors told me that every baby can use their hands. That’s when I realized there was something wrong with him.”After multiple visits to the doctor, Freed was able to find a genetic specialist to give Maxwell a diagnosis. “He looked at me and said, ‘Something is very wrong with your son. I don’t know if he’s going to live,’” Freed said. “My soul was just crushed. It was a sadness I didn’t even know existed on earth. You never think something like this could happen. I left my career, and I had no other choice but to create my own miracle and to find a treatment forward to help Maxwell and all those others like him.” Freed searched for scientists trying to create a cure, which she found at the University of Texas Southwestern Medical Center in Dallas. “We’re working with diseases where kids are born with a defective gene,” said Steven Gray, an associate professor at UTSW in pediatrics. “Our approach is to replace that gene to fix the condition at the level of their DNA. We’re taking the DNA that those patients are missing and packaging that into a virus and use that virus as a molecular delivery truck to carry those genes back in their body and fix their DNA.” “It’s a rare disease, no one has ever heard of it,” Freed said. “But one rare disease messed with the wrong mother.” Freed said she has raised million to help with research for the cure and will need an additional million, in order to let Maxwell and many others continue to enjoy life. “I want Maxwell to have every opportunity that children should have in this life,” Freed said. “When he is having a good day, I just try and soak him in as much as I can. We don’t take anything for granted in this house.” If you want to help donate for the cure, you can do so by visiting 2535

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A Cincinnati police officer outed an undercover colleague to the nightclub owner under investigation and concealed ,000 in off-duty income from the IRS, according to federal prosecutors.Quianna Campbell, 39, was arrested Friday. She stands charged with lying to federal agents and submitting false tax returns.According to the criminal complaint filed against Campbell in United States District Court, federal agents first became aware of her during a 2015 investigation into Cincinnati nightclubs’ potential involvement in organized drug trafficking and money-laundering. “During the course of this investigation, information was received that individuals associated with nightclubs had been or were currently being warned of police activities and were in essence being tipped off and possibly protected by members of the Cincinnati Police Department,” an IRS investigator wrote. Investigators later uncovered text messages in which a nightclub owner texted Campbell to ask about a specific person who had visited the club. “She’s an officer….” Campbell wrote back. She also discussed possible reasons police would be investigating the club, writing: “They work on random nights and go into different bars. If they come back again next weekend I would say yes.”In an interview with federal investigators, Campbell denied sending the messages and said she would never out an undercover officer. In 2018, according to the complaint, Campbell would admit she had also concealed a total of ,000 she had earned working off-duty details between 2015-17. She didn’t report the total to the IRS in her taxes, “because if she had reported the income she would not have received as large of tax refunds she received from the federal government,” the IRS investigator wrote.If convicted on both charges, Campbell could spent up to eight years in federal prison."The Cincinnati Police Department is aware of the indictment and arrest of Police Officer Quianna Campbell this afternoon," a department spokesperson wrote in a statement Friday afternoon. "We will be monitoring the judicial process and provide an update if more information becomes available." 2163

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“I’d love to go… and stare in their corrupt faces”President Trump calls US Democrats “major sleazebags” after saying he "would love to go" along to his impeachment trial and "sit in the front row" at the World Economic Forum in Davoshttps://t.co/BJeQHUro8b pic.twitter.com/TVnn7hvEsm— BBC News (World) (@BBCWorld) January 22, 2020 342

  

A flight attendant on a United Express plane was charged with public intoxication after passengers complained about her behavior on the flight.According to the 172

  

A man walking along a partially iced-over Lake Michigan in Chicago needed to be rescued by fast-acting officers and paramedics, the department said on Sunday.The unidentified person's rescue was captured on video, and shared by the Chicago Police on Sunday. In the video, two SWAT officers could be seen reaching the man first after a civilian who witnessed the incident ran to get help. It only took seconds for the two officers to reach into the water and pull the man out of the water.According to the Chicago Police, the person was transported to Northwestern Memorial Hospital in critical condition. 616

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