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A Colorado family is reaching out to the public for help in treating their 15-year-old son’s rare and debilitating skin condition.For seven years, Jaiden Rogers has suffered from stiff skin syndrome, a disease that causes the skin to harden.“When they said it was stiff skin syndrome – I was like oh good it’s only that,” said Natalie, Jaiden’s mother. “But the doctor said, ‘oh no I don’t think you understand.’ They said his skin would turn to stone. Within a month, he was in a wheelchair. It spread so fast. Within just a few months, he was starting to get it everywhere.”The condition has caused his skin to gradually tighten and harden, spreading from his legs to his hips and then to his stomach and neck.It started as a growth behind his knee. Jaiden has since lost mobility. The syndrome is a painful one as the skin thickens, limiting joint mobility. The syndrome is sparked by a mutation change, and an exact treatment is unknown.With no cure for the disease, Rogers and his family are now banking on an experimental procedure to save his life.“Doctors in Ireland are working with doctors in London. This is very expensive,” Natalie said. “The whole treatment is .5 million, because they actually have to make something for him, because he is the only child. It’s our only hope, and we are running out of time.”Natalie says her son is “turning to stone,” leaving him unable to walk and sometimes giving him trouble breathing. He sees six doctors and takes chemotherapy drugs to slow the disease’s progression.Jaiden is being treated at Children's Hospital in Aurora, Colorado. He may be the only one in the world being treated for what has been tabbed stiff skin syndrome. Altogether, there have only been a few dozen documented cases of the disease.Today, Jaiden remains confined to a wheelchair and takes chemotherapy to slow the progression. However, the condition has since spread to his stomach, chest, and neck, making it difficult for him to breathe.The family has started a GoFundMe page to raise money for the experimental treatment. The fund’s .5 million goal includes 5,000 for a medical flight to Europe. 2142
A former DACA recipient who had previously claimed he was wrongly deported was arrested on Monday night after attempting to illegally enter the US from Mexico, according to US Customs and Border Protection.Juan Manuel Montes Bojorquez, 23, was seen by Remote Video Surveillance Systems operators crossing the border a few miles east of Calexico, California, according to Border Patrol. The agency said he ran about 200 yards north of the border fence, laid down on the ground, and then stood up and ran again as agents approached him.He was arrested and booked into the Imperial County Jail on pending charges of re-entry after removal, Customs and Border Protection said.He was arrested under the same charge in February, CBP said, which was when Montes claimed he had been wrongfully deported."Our agents witnessed and arrested Mr. Bojorquez making an illegal entry into the United States for the second time this year," said Assistant Chief Patrol Agent David S. Kim. "Border Patrol Agents will always stop, detain, and arrest anyone making an illegal entry into the country irrespective of their immigration or citizenship status."Montes' earlier lawsuit had been a flashpoint in the Trump administration's policies toward the Deferred Action for Childhood Arrivals program, known as DACA. The program, which began under former President Barack Obama, provides protections to undocumented immigrants who were brought to the US as children.Advocates seized on Montes losing his protections and being deported as an example of the administration targeting DACA recipients, though Montes' claims about being wrongfully deported have thus far been unsubstantiated. 1678
A famous guitar making company that's been in business more than 100 years could be headed into bankruptcy.A report by the Nashville Post in early February states Gibson Guitar is facing huge debt obligations. Gibson's Chief Financial Officer, Bill Lawrence, left the firm six months before 5 million of senior secured notes were due to mature. Lawrence had been working for the company for little over a year before he left, reports say."Another 5 million in bank loans will come due immediately if those notes, issued in 2013, are not refinanced by July 23," the Nashville Post report says.Bond holders are frustrated.The Gibson company recently sold a former Baldwin Piano warehouse in The Gulch. The warehouse was sold for .4 million, the Nashville Post says."It also is trying to sell the nearby Valley Arts building on Church Street, although that deal has landed in court. But those sales — the Valley Arts property will bring in about million — are unlikely to make a big enough dent to stave off a painful overhaul," the Nashville Post report says.Gibson Guitar was founded by Orville Gibson in 1902 in Kalamazoo, Michigan. 1167
A child in Galion, Ohio tested positive for meth on Sunday, just hours after trick or treating in the small town located between Columbus and Cleveland, WBNS-TV reported. According to the Galion Police, the boy is expected to make a full recovery after suffering a seizure. The boy reportedly was sickened after playing with fake teeth that were given to him while trick or treating. The boy's father reportedly said that the boy only had a few pieces of candy before getting sick. The Galion Police has not confirmed how the boy became sick from meth, and an investigation is underway. In the meantime, the police department has issued a warning to its residents. "We encourage parents to thoroughly check any candy your children may have received before they eat it," the Galion Police Department said. An expert on Halloween sadism, Joel Best, has previously said that intentional tainting of trick or treat candy is generally rare.“There is this fear out there, and it is terribly overblown,” Best said. “They are worried that some maniac will hand them a contaminated treat, and I can’t find any evidence that has ever resulted to a death or serious injury.” 1201
A federal court has ruled that President Donald Trump cannot constitutionally block his followers in Twitter.Judge Naomi Reice Buchwald of the US district court in the Southern District of New York ruled that public officials may not block a person from his Twitter account based on the that person's political views — and Trump's position as President had no bearing on the case.The case was brought by Columbia University's Knight First Amendment Institute and filed against President Trump, former White House communications director Hope Hicks, press secretary Sarah Huckabee Sanders and social media director Dan Scavino.More on this as it develops. 677