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Before the public presentation over the weekend, organizers also collected comments and suggestions from residents through different channels, such as letters, websites and phone apps.
Because only a small number of people have each disease, patients and their families often find that medicines are too expensive or extremely hard to buy, said Jia Qianqian, a coordinator with the NGO. The medicines used to treat some rare diseases can cost up to 4.88 million yuan a year.

Behind the app is a 15,000-strong army of freelance destination planners. They work on mapping out schedules and itineraries, and are paid a fee for their efforts.
Beijing Youth Daily reported the jumper as Alex Pykhov, an extreme sports enthusiast, who jumped from the 500-meter level of Citic Tower, which is being built in Jianguomenwai, Chaoyang district, on April 1. The tower will be the city's tallest building.
Beijing's approval, allowing local governments to issue toll road special bonds, was welcomed by analysts on Thursday, who said it would help fund major road network construction in the central and western regions and lower liquidity risks.
来源:资阳报