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BARTLETT, Ill. — For parents who are caregivers of adults with disabilities the question about who will care for them after they’re gone is haunting. And even for those who understand the system and plan ahead, the course is challenging. It’s something Liz Mescher knows all too well.“It should not be this hard,” she says as she puts on display the stacks of forms, denials and appeals she has organized in piles and folders in her kitchen. Mescher says trying to get the benefits her sons need is a never-ending battle. “I mean that's all I do, my counter gets filled with paperwork,” Mescher says.Caring for her two sons is more than a full-time job. “We're on top of them all day long. So, they're really not out of our eyesight,” she explains.Both her sons Eric and Ryan, are in their 20s and have autism.“The younger one has a lot of anxiety and the older one just can't tolerate being touched,” Mescher says. And as they’ve grown older, caring for the men under the same roof has become increasingly difficult.“So the goal is to get placement for Eric to go into housing so he can be happy, and we could probably get a little break,” the mother says.But the wait lists for services like group home placement are long. As of 2017, 707,000 people were on waiting lists in 40 states. That’s an increase of 8% from the previous year.In Illinois, where the Meschers live, the wait list is more than 19,000. Meg Cooch, the executive director of Arc Illinois, says the state is not unique. Cooch’s advocacy organization focuses on people with intellectual and developmental disabilities and their families. “There are lawsuits around the country looking at waiting lists and looking at people getting access to community services because it's such a problem,” Cooch says.Resources, funding and housing options for adults with intellectual and developmental disabilities are dwindling. Professional caregivers are becoming less willing to do the job for what states are willing to pay. “It's not a minimum wage job,” Cooch explains. “And as a result, we are competing with fast food and with Amazon paying an hour to be able to find people to be able to provide these supports.”With one in four cared for by family members who themselves are aging, experts say we are in the midst of a full-blown caregiving crisis.“It's going to be a crisis now and it's going to be even more of a crisis in the future,” Cooch warns.Approximately 39.8 million caregivers provide care to adults with a disability or illness. What’s startling is that more than half of these families say they have no plan in place for when the caregiver passes away. Over the last eight months Mescher has applied to 16 group homes. She hasn’t heard back from any of them. “These kids have to have a place to go," Mescher said. "They have to have a place as adults to go. What are you going to do with them? You know one day we're not going to be here. Where are they going to be? They have to be settled.”For parents like Mescher it’s that uncertainty of what will happen to her children when she’s gone that’s most unsettling. 3109

Anyone want a tropical storm? They are forming like roaches out there! 6 at once in both basins combined is thought to tie a modern NHC record , with two other disturbances adding the cherries on top of a crazy busy day! pic.twitter.com/yIi9PHIKSn— Eric Blake ?? (@EricBlake12) September 17, 2019 308

At any moment, the calmness in the critical care unit at Swedish Medical Center can change to something intense.“We bring people back to life,” said Emily Belfoure, a nurse there. She said they are caring for people who have been in major car crashes, had cardiac arrests, recent open heart surgeries — people with huge medical need.She called it amazing … but challenging.“The families are very emotional, and so you kind of take on some of that stress as a secondary type trauma,” she said.Belfoure decided to start a group for her team to debrief after a traumatic event. The goal is for folks to express their feelings about what they just went through and to cope with the stress of such intense experiences.She wants to help prevent burnout.“There's kind of like a four -or five-year mark in nursing where people either can deal with the burnout they learn coping mechanisms or they find a different job,” she said.The World Health Organization now recognizes burnout as an occupational phenomenon. It’s described as a syndrome resulting from chronic workplace stress.WHO says there are three major symptoms: Feeling exhausted or depleted of energy, being mentally disconnected from or cynical about one’s job and problems getting the job done successfully.“It's something that we don't want to just ignore,” Belfoure said.Dr. Monique Butler is the chief medical officer at Swedish and says burnout can take a toll on health.“It can cause a number of different additional symptoms including chest pain shortness of breath and it could really manifest itself into physical symptoms,” she said.The doctor advises acknowledging symptoms, talking to trusted people and seek professional advice if necessary.Have the debriefing meetings, Belfoure said, has made a big difference for people working there.“It's kind of more of a team and more of a family than just you alone taking care of these challenging patients and dealing with this by yourself,” she said. 1974

Attorney General William Barr said Tuesday he expects to release a redacted version of special counsel Robert Mueller's nearly report "within a week," but he does not plan to provide Congress with an unredacted version of the report, setting the stage for a showdown with congressional Democrats.Barr told a House subcommittee Tuesday that the redactions process was going "very well," and he would explain the rationale for the redactions that are made from Mueller's nearly 400-page report. But he said he would not accede to Democrats' demands that he provide the full, unredacted report to Congress, arguing that he cannot legally release grand jury material and that he did not plan to ask a court to release it."I don't intend at this stage to send the full, unredacted report to the committee," Barr said.Barr's comments Tuesday come ahead of a brewing clash between Congress and the Trump administration over the Mueller report, as Democrats are indeed prepared to go to court in an effort to obtain the unredacted Mueller report and the special counsel's underlying evidence. Democrats on the House Judiciary Committee have already authorized a subpoena for the full Mueller report and the underlying evidence, which House Judiciary Chairman Jerry Nadler said Tuesday he is waiting to see what Barr releases before moving forward on the subpoena."The question is what we receive -- do we receive a full copy of the Mueller Report and the documentation underneath it?" Nadler said. "Do we receive most of it with a little redaction or do they completely expurgate it? We'll have to take a look at it."Asked Tuesday about the grand jury material, Barr told a House Appropriations subcommittee: "The chairman of the Judiciary Committee is free to go to court."Four types of information would be redacted from the report he submits, Barr said, including grand jury material, classified information, material tied to ongoing investigation, and information that could harm "peripheral third parties."Barr defends four-page summaryDemocrats pressed Barr on his decision to release a four-page summary of Mueller's conclusions, particularly in light of reports that some on Mueller's team have told others they were unsatisfied with how Barr characterized the investigation.Barr said that Mueller was given the opportunity to review the summary Barr released last month detailing the Mueller's conclusions, and the special counsel declined to do so. He said he suspected that members of Mueller's team wanted more from him, but he explained that he wasn't trying to summarize the full report with his four-page letter, which stated Mueller's investigation did not establish a criminal conspiracy between Trump's team and Russia, and that Mueller reached no conclusion on the question of obstruction of justice."I suspect that they probably wanted more put out," Barr said. "In my view, I was not interested in putting out summaries or trying to summarize, because I think any summary, regardless of who prepares it, not only runs the risk of being under-inclusive or over-inclusive, but also, would trigger a lot of discussion and analysis that really should await everything coming out at once."Barr said the White House did not review his letter, but he declined to answer questions about whether the White House has been briefed on the report."I've already laid out the process that is going forward to release these reports hopefully within a week. And I'm not going to say anything more about it until the report is out and everyone has a chance to look at it," Barr said.Barr's answers did not appear to satisfy Democrats, who repeatedly urged Barr to release the full report and fully explain any redactions that Barr decided to make."I think it would strike a serious blow to our system, and yes, to our democracy, if that report is not fully seen," said New York Rep. Jose Serrano, the chairman of the Commerce, Science and Justice Subcommittee holding Tuesday's hearing. "We're not here today to be in a confrontational situation with you. We want to help you do the job, and you need to help us do ours."House Appropriations Chairwoman Nita Lowey told Barr that his handling of Mueller's report was "unacceptable" and the summary he released "raises more questions than it answers.""I look forward to reviewing the Mueller report myself, and I know my constituents do as well," Lowey said. "I understand that portions of it must be redacted as a matter of law, but my hope is that you will stop there and bring transparency to this process as soon as possible."Republican lawmakers, on the other hand, have not so far asked questions about Mueller and are focusing on budget issues in the hearing. GOP Rep. Robert Aderholt of Alabama, the top Republican on the subcommittee, did not mention Mueller in his opening statement.Barr is scheduled to return to Capitol Hill on May 1 and May 2 for hearings before the Senate and House Judiciary Committees specifically to answer questions about the Mueller investigation.Barr told Congress earlier this month he expected to release a redacted version of Mueller's nearly 400-page report by "mid-April, if not sooner." 5184

An estimated 130,000 people -- almost 4% of the population -- left the island of Puerto Rico in the aftermath of Hurricane Maria, according to data released Wednesday by the US Census Bureau."It's a really large number -- and it's a number that's well above what we've seen in the past," Alexis Santos, a demographer at Penn State University, said of the population decrease. "Here, what you're looking at is double -- double the displacement we would have expected" in a normal year.The population of the US territory has long been falling and now sits at about 3.2 million. Amid a debt crisis and other problems, more than 530,000 people have left Puerto Rico since 2010, the agency says.The population estimates are considered the most authoritative look yet at the "exodus" of people from the Caribbean island amid monthslong power outages and other chaotic conditions that 890