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A Denver family is trying to raise million in order to cure their son with a rare genetic disease. Doctors told Amber Freed that her 2-year-old son is one of 34 people in the world to have this rare neurological genetic disease. “The disease is so rare, it doesn’t even have a name,” Freed said. “It’s called SLC6A1, because that is the gene that it effects.” The disease causes Maxwell to have trouble moving and communicating, and soon it will only get worse. “The most debilitating part of the disease will begin between the ages of 3 and 4,” Freed said. “So, we are in a fight against time.”Maxwell has a twin sister named Riley. “I noticed early on that Maxwell wasn’t progressing as much as Riley,” Freed said. “I noticed he couldn’t use his hands. The doctors told me that every baby can use their hands. That’s when I realized there was something wrong with him.”After multiple visits to the doctor, Freed was able to find a genetic specialist to give Maxwell a diagnosis. “He looked at me and said, ‘Something is very wrong with your son. I don’t know if he’s going to live,’” Freed said. “My soul was just crushed. It was a sadness I didn’t even know existed on earth. You never think something like this could happen. I left my career, and I had no other choice but to create my own miracle and to find a treatment forward to help Maxwell and all those others like him.” Freed searched for scientists trying to create a cure, which she found at the University of Texas Southwestern Medical Center in Dallas. “We’re working with diseases where kids are born with a defective gene,” said Steven Gray, an associate professor at UTSW in pediatrics. “Our approach is to replace that gene to fix the condition at the level of their DNA. We’re taking the DNA that those patients are missing and packaging that into a virus and use that virus as a molecular delivery truck to carry those genes back in their body and fix their DNA.” “It’s a rare disease, no one has ever heard of it,” Freed said. “But one rare disease messed with the wrong mother.” Freed said she has raised million to help with research for the cure and will need an additional million, in order to let Maxwell and many others continue to enjoy life. “I want Maxwell to have every opportunity that children should have in this life,” Freed said. “When he is having a good day, I just try and soak him in as much as I can. We don’t take anything for granted in this house.” If you want to help donate for the cure, you can do so by visiting 2535

A “credible” threat over the new psychological thriller “Joker" forced a California movie theater to close down temporarily, police said.Authorities were called to the Century Huntington Beach and XD theater on Thursday about a possible threat in response to the opening of the film, which has been cause for concern over the 338

A Kentucky man who was shot while on his way home from visiting his newborn twins died Friday in the same hospital where he had just become a father.Tyrese Garvin, 20, was shot multiple times on June 23 after leaving University Hospital in Louisville, according to 277

"Saturday Night Live" has fired one of its most recent hires, Shane Gillis, just days after videos of comedian making bigoted comments came to light."After talking with Shane Gillis, we have decided that he will not be joining 'SNL,'" an 'SNL' spokesperson on behalf of Lorne Michaels said in a statement to CNN. "We want 'SNL' to have a variety of voices and points of view within the show, and we hired Shane on the strength of his talent as comedian and his impressive audition for 'SNL.' We were not aware of his prior remarks that have surfaced over the past few days. The language he used is offensive, hurtful and unacceptable. We are sorry that we did not see these clips earlier, and that our vetting process was not up to our standard." 758

11 AM EDT July 10: Here are the Key Messages for Potential Tropical Cyclone #Two. A tropical storm and storm surge watch has been issued for a portion of the Louisiana coast. For more see https://t.co/tW4KeFW0gB and https://t.co/SiZo8ohZMN pic.twitter.com/RgljWGk3Zy— National Hurricane Center (@NHC_Atlantic) July 10, 2019 336

来源：资阳报