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With ventilators hard to find amid the spread of the coronavirus, families across the world worked together to find a ventilator for a child in Ecuador. Wilson, at age 18 months, is at an age one half of children with Centronuclear Myopathy don't get to see."At the beginning, they didn’t get any diagnosis, it was 5 months until they got the diagnosis. The first months it was very uncertain what was going to happen. They had no idea and because of the disease is very, very uncommon and rare, the doctor had no idea," said Jen Bilbao, translator for the family."These children are born very weak, a majority of them do not breathe spontaneously on their own. They cannot eat orally, cannot sit up on their own," said Alison Frase, Joshua Frase Foundation cofounder.That means they need a ventilator, something that was in short supply here in the U.S. just a few weeks ago, but is nearly impossible to find in Ecuador. Frase's son, Joshua, was born with Myotubular Myopathy in 1995. He passed away 15 years later. And in his death, Alison started the Joshua Frase Foundation and an equipment exchange program."That’s the first family we have in Ecuador because normally the children there with this kind of diseases, unfortunately they don’t survive because there is not equipment," said Bilbao. "It’s very, very hard for them to go home so there’s little that they can do for them."Bilbao used to live in Ecuador. Now, she’s in Germany. She started CNM – Together Strong!, an association that helps families with centronuclear myopathies in Germany after her son was born with Myotubular Myopathy. Wilson’s parents got ahold of her after finding information online in Spanish — asking for help finding a ventilator so they could bring Wilson home."She was very desperate because she thought she was going to be at the hospital her whole life," Bilbao said, translating for Wilson's mom.Bilbao reached out to Frase to see if there was anything she could do to help."I was scrambling making posts on our private groups looking for the equipment to piecemeal this ventilator together," said Frase. "I knew I had a ventilator from, unfortunately, a child, actually a young man, that had passed this year, and I reached out to that mom, and she said absolutely you can have it."The ventilator came from a family in Utah, the plug, connectors, and other parts from another family in Utah, and the humidifier from a family in Texas. They were shipped to Bilbao’s brother who still lives in Ecuador to take to the family."We couldn’t ship it to the hospital because they were feeling that it’s going to get lost at the hospital. Then where they live there’s no post office because they don’t live in the city they live outside the city, it’s very hard for the post to get packages to them," said Bilbao.For Wilson’s parents, this gift is more than just a medical device."They felt really like they could breathe again. So it was not only a breath for their child, but a breath for them because they didn’t know what to do. And to know that somebody was going to help, it was very peaceful," said Bilbao. 3107
Click here for the District's main parent resource page. Turn to this website for information about important district forms, engagement opportunities, and parent FAQs. 176
— a partnership between Brad Paisley, his wife, Kimberly Williams and Belmont University — typically offers healthy food to people in need in the Nashville area. But amid the coronavirus pandemic, Paisley says the organization will offer free delivery to seniors in certain parts of Nashville.A group of volunteers have agreed to deliver a weeks worth of groceries to a designated list of seniors that live near The Store. Paisley also asked followers to reach out if other seniors in the area needed to be added to the list.According to Paisley's Instagram post, deliveries will take place to seniors on Wednesdays and Thursdays. According to 645
ZEPHYRHILLS, Fla. — A Pasco County, Florida woman was arrested on Wednesday after deputies say she attacked her husband because he forgot their wedding anniversary.Pasco County deputies say that the fight between 35-year-old Carol Stone and her husband began as a verbal argument because he forgot the anniversary date. According to the victim, the argument turned physical when Stone allegedly smacked him multiple times on the head and face, leaving red marks and scratches, according to an arrest report.Stone's husband recorded the incident on his cell phone. Deputies say the video showed Stone striking her husband multiple times. Stone later admitted that she had a fight with her husband because he forgot their wedding anniversary, deputies say.Stone was arrested and charged with domestic battery. 841
following mass shootings in El Paso, Texas and Dayton, Ohio.Flags should be flown at half-staff until Aug. 8, Trump said in a proclamation.You can read the full proclamation below:Our Nation mourns with those whose loved ones were murdered in the tragic shootings in El Paso, Texas, and Dayton, Ohio, and we share in the pain and suffering of all those who were injured in these two senseless attacks. We condemn these hateful and cowardly acts. Through our grief, America stands united with the people of El Paso and Dayton. May God be with the victims of these two horrific crimes and bring aid and comfort to their families and friends. As a mark of solemn respect for the victims of the terrible acts of violence perpetrated on August 3, 2019, in El Paso, Texas, and on August 4, 2019, in Dayton, Ohio, by the authority vested in me as President of the United States by the Constitution and the laws of the United States of America, I hereby order that the flag of the United States shall be flown at half-staff at the White House and upon all public buildings and grounds, at all military posts and naval stations, and on all naval vessels of the Federal Government in the District of Columbia and throughout the United States and its Territories and possessions until sunset, August 8, 2019. I also direct that the flag shall be flown at half-staff for the same length of time at all United States embassies, legations, consular offices, and other facilities abroad, including all military facilities and naval vessels and stations.IN WITNESS WHEREOF, I have hereunto set my hand thisfourth day of August, in the year of our Lord two thousand nineteen, and of the Independence of the United States of America two hundred forty-fourth.This story was originally published by 1781