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As September is NICU Awareness Month, parents of NICU babies are working to serve as a voice for families who are trying to navigate the overwhelming and often terrifying experience of watching your baby in a neonatal intensive care unit, especially during a pandemic.When Andi Petito was 21 weeks pregnant, she went in for a simple and common anatomy scan of her baby.“When she got really quiet and excused herself,” Petito said about a routine appointment. The technician who performed the ultrasound returned with the doctor who said there were some major problems, Petito was sent to the hospital where she would remain on bed rest until she went into labor. Petito gave birth to River at 24 weeks, weighing 1 pound, 7 ounces. River was transferred to the NICU.“They warn you it's a roller coaster and they try to prepare you but you’re not really prepared for the ups and downs,” Petito said.That roller coaster is how they describe the NICU.“Terrifying, stressful and, I mean, we lived on edge,” Petito said. “You almost feel paranoid because you’re so worried about her compromised immune system, comprised lungs. Kind of like we’re all living now, but no one else is joining you in it.”Neonatologist Dr. Melinda Elliott said no one expects, prepares or plans for a NICU stay.“Nobody plans to meet me, nobody plans to meet the doctor who specializes in sick babies,” Elliott said.She said parents should not focus on all of the machines and equipment that surround your newborn.“The best thing you can do is turn the other way and focus on your baby,” Elliott said. “Just look at your baby because that baby is your baby no matter how small or how sick. You’re the only parent that baby has.”Elliott said the pandemic has stripped the visitor policy. Usually, there's only one parent allowed in at a time. While that's hard for already stressed families to manage, she reminds parents to focus on the importance of nutrition and to continue to advocate for your baby.“Probably the biggest piece of advice is just ask questions, keep asking,” Elliott said. “If you don’t get an answer you like, ask again and find somebody else to ask. You deserve to understand what’s going on with your baby:”Now, after 129 days in the NICU, that once tiny little baby is 3 years old, and likes to discuss her favorite color, pink, and all things Paw Patrol. Petito said she got through the NICU by doing her own research, being her own advocate, fighting for what her baby needs and by being honest with herself.“It’s OK to fall apart sometimes,” Petito said. “Parenthood is not what you envision when your child is not able to come home with you and everything has been blown up and so it’s okay if you need to cry and fall apart and pick yourself back up and go to the NICU.”The Petitos have now given River a sibling. Fern is happy and healthy and didn't need the NICU. And while it was never an easy roller coaster ride, they say it made River the strongest little fighter they know. 2987

AVENAL, Calif. (AP) — Authorities say an inmate at a central California prison died of complications from the coronavirus Saturday, becoming the state’s 79th person to have a fatal case of COVID-19 while they were incarcerated. The Avenal State Prison inmate died at a hospital. The prisoner’s name was not released. There have been 15,872 confirmed cases of the coronavirus in the state prison system. Advocates say jails and prisons nationwide are prime locations for the virus to spread between inmates and staff. Officials have released hundreds of inmates to decrease jail and prison populations across the country during the pandemic. 648

AUSTIN, Texas (AP) — Texas and six other states are suing to end once and for all a program that would protect some young immigrants from deportation.The lawsuit announced Tuesday comes a week after a federal judge in Washington ordered the Trump administration to resume the Deferred Action for Childhood Arrivals program.Immigrants under the Obama-era program are commonly referred to as "Dreamers." Republican Texas Attorney General Ken Paxton had threatened legal action for the past year if the program didn't come to a halt.Joining Texas in the lawsuit are Alabama, Arkansas, Louisiana, Nebraska, South Carolina and West Virginia.A federal judge in Washington called the Department of Homeland Security's rationale against the program "arbitrary and capricious." He gave the Trump administration 90 days to make a new case. 837

Attorney General Pam Bondi said Tuesday that Home Depot is sending 45 tractor-trailers containing disaster-relief supplies to Florida communities impacted by Hurricane Irma and pledging even more supplies before the end of the week.Millions of Floridians are still without power and thousands more have been displaced by flooding or storm damage.Bondi said the Home Depot trucks are carrying cases of water, plywood, generators and electrical cords, among other items.The supplies, headed to South Florida, will be sold at normal prices.Bondi's office said the home building company is shipping additional supplies in the coming days with more than a million bottles of water expected by the end of the week.The state said Home Depot will sell the water for .97 a case.Florida’s Price Gouging Hotline remains open during this emergency declaration covering all 67 counties.  914

As school districts across the country prepare to return to school, small businesses that rely on child visitors are closely watching."We're probably at about 15-20% of the business that we normally do. It has been a real gut-wrenching, heart-wrenching moment," said Susan Shaw, owner of The Art Barn in Georgia.When the pandemic hit in March, she thought her business would only be on a month hiatus. Shaw, who goes by Farmer Sue, quickly realized that wasn't the case."By the end of the month I realized we are not going to be back to normal. The schools, our entire spring was lost and 95% of our summer is lost and 100% of our fall is lost because no one is going to be coming out on field trips," said Shaw.The Art Barn provides art and agriculture entertainment for children throughout the year. Shaw hosts birthday parties, school field trips and even teaches at private schools in the afternoon. They, like Benton Family Farms in Kentucky, rely almost entirely on birthday parties, field trips and summer camps to keep their businesses running.Benton Family Farms says their camps ended up getting canceled."Nothing. Five weeks of camp, every weekend of birthday parties, all of our mobile trailers going out. Our mobile trailer was going out to day care centers, churches and libraries," said owner Mary Marcum.Marcum says every single scheduled event they had was canceled. Marcum has been running educational programs on the farm her parents owned for 72 years."For eight weeks now I thought, gosh what can we do? Because my husband does most of the books and he’s said, 'You're in trouble. You’ve got to do something.' And I had done goat yoga about three years ago, but I didn’t have the time," said Marcum.Marcum ended up turning to that one program she felt could hold up during the pandemic: goat yoga."Goat yoga! People were like, it's almost outdoors, it just has a cover over it. It was an open barn and they started coming!" said Marcum.The twice weekend sessions are helping Benton Family Farms pay for some of the feed for their animals. Marcum is now taking donations, holding auctions online and creating any limited outdoor programming she can to try and stay open. So far, only about 180 people are coming out to visit the farm a month. Compare that to their normal of 4,000 people a month. "You're talking about a parent and a child. At 4,000 that’s ,000. I can do all the little things I want but there’s a lot that’s just too much to make up," said Marcum."There were a lot of tears, more prayers and then more tears and then it was finally in mid-June I was able to grab my bootstraps and say, ‘No, you made this business from absolutely nothing, a crazy idea no one thought would work. Girl get your gumption and get going,'" said Shaw.The Art Barn is also trying to be creative with programming to bring people back to her farm during the pandemic. Shaw is creating educational videos of her programs that can be used as a virtual field trip for school districts across the country."There literally will be a field trip online and we’ve broken them into the five stations so the school can purchase, rent those videos and go online," said Shaw.Small businesses like The Art Barn and Benton Family Farms are desperately hoping that schools will allow field trips again soon. Right now, they aren't expecting any student visitors this fall but are hopeful that COVID-19 rates will at least be low enough for field trips to resume in the spring. 3489

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