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WAUWATOSA, Wis. — A 3-year-old in Wisconsin can see for the first time thanks to a new procedure. McKinley Sovey is the youngest person to undergo this type of gene therapy. Her parents Parker and Julie Sovey have been watching her progress."There was that moment when she did look at me for the first time," said Julie. "I was like I think this is working. I can't even really explain it. She's 3 years old and she looks at mom for the first time. It was a really really cool moment and it was the moment I was waiting for."McKinley was born practically blind. The most she could see was the contrast of light. When she was a year and a half, doctors discovered she inherited a retinal disease. "Six months after that FDA approval, and then less than a year after that she's having the procedure, so it's been like rapid fire," Parker said. Dr. Stephen Russell works in the Department of Ophthalmology and Visual Sciences at the University of Iowa Hospital. He performed both of McKinley's eye surgeries with the gene therapy earlier this month. "Complicated drug because it has multiple parts to the drug and complicated surgery because to make sure we delivered the drug to the appropriate tissues," said Russell.Russell said he is basically forcing DNA into the right cell."We had to do a surgery just to put the solution in the appropriate spot, which is in the area underneath the retina," he said. "At that point, it's just fingers crossed that this gene ends up in the spot that it's supposed to," said Julie.The Soveys knew there were risks and potential complications. "It's terrifying," said Russell.They were hoping the therapy would at least help McKinley maintain the little vision she had. After the first eye surgery, mom and dad didn't notice a difference. But it was shortly after the second surgery they knew it worked. Parker said she was moving with a purpose."She walked into the kitchen, pulled a chair out, stood up on the chair and actively feeling like the toaster and the coffee maker like she knew those were there and she wanted to get up and be able to feel them," he said.McKinley's depth perception is also changing."Being able to see things further away has been really neat and it's also been kind of scary because I feel like I'm having to re-childproof the house for a 3-year-old," said Julie."She use to feel around for whatever it was she was eating," Parker said. "Then she'd put her hands in it to see what it was and then she'd put the spoon in it, and then usually it was dumped by the time it got to her face."McKinley will still likely be visually impaired, but her parents said any progress is a bonus."She may no longer need to be a braille reader," Julie said. "I don't know if she'll need to use a cane to navigate."They said their daughter is becoming more confident and her personality is even changing."This is kind of part of medical history," said Julie.McKinley has some checkups scheduled, but doctors hope she won't need another surgery. 3071
We are all devastated by Emma’s loss and were not prepared for the high cost of a funeral service. We want to give Emma the memorial she deserves, to honor her memory and say our last goodbyes. I am currently asking for donations to help cover the cost of Emma’s funeral. 280
WASHINGTON, D.C. – Democratic lawmakers in both chambers of Congress are introducing a bill that would ban the federal government from using biometric technology, including facial recognition technology.The bill would also effectively strip federal support for state and local law enforcement entities that use biometric technology. Sen. Ed Markey (D-Mass) is joining forces with Sen. Jeff Merkley (D-Ore.), Rep. Pramila Jayapal (WA-07) and Rep. Ayanna Pressley (MA-07) to introduce the Facial Recognition and Biometric Technology Moratorium Act in the House and Senate.This measure comes amid growing calls from civil rights advocates who say facial recognition technology disproportionately misidentifies non-white individuals. It’s the first bicameral piece of legislation introduced that focuses on the tech since police brutality protests began about a month ago.In a press release, Markey cited a growing body a research that points to inaccuracy and bias issues with these technologies, which pose disproportionate risks to people of color.Markey points to a National Institute of Standards and Technology report on facial recognition tools that found Black, Brown and Asian people were up to 100 times more likely to be misidentified than white male faces.The bill’s introduction comes just one day after the ACLU amplified the story of a Black man in the Detroit area who says he was wrongfully arrested after this kind of technology misidentified him as a man seen stealing ,800 worth of watches.Specifically, the proposed legislation would do the following:Place a prohibition on the use of facial recognition technology by federal entities, which can only be lifted with an act of Congress;Place a prohibition on the use of other biometric technologies, including voice recognition, gate recognition, and recognition of other immutable physical characteristics, by federal entities, which can only be lifted with an act of Congress;Condition federal grant funding to state and local entities, including law enforcement, on those entities enacting their own moratoria on the use of facial recognition and biometric technology;Prohibit the use of federal dollars for biometric surveillance systems;Prohibit the use of information collected via biometric technology in violation of the Act in any judicial proceedings;Includes a private right of action for individuals whose biometric data is used in violation of the Act and allows for enforcement by state Attorneys General; andAllow states and localities to enact their own laws regarding the use of facial recognition and biometric technologies.“Facial recognition technology doesn’t just pose a grave threat to our privacy, it physically endangers Black Americans and other minority populations in our country,” said Markey. “As we work to dismantle the systematic racism that permeates every part of our society, we can’t ignore the harms that these technologies present. I’ve spent years pushing back against the proliferation of facial recognition surveillance systems because the implications for our civil liberties are chilling and the disproportionate burden on communities of color is unacceptable. In this moment, the only responsible thing to do is to prohibit government and law enforcement from using these surveillance mechanisms. I thank Representatives Jayapal and Pressley and Senator Merkley for working with me on this critical legislation.” 3433
WASHINGTON (AP) — The number of U.S. active-duty troops deployed to the U.S.-Mexico border has "pretty much peaked" at the current total of 5,800, the Pentagon's No. 2 official said Thursday.That is far below the 10,000 to 15,000 that President Donald Trump initially said would be needed to secure the border against what he called an "invasion" of migrants.Deputy Defense Secretary Patrick Shanahan was asked about the military mission one day after his boss, Defense Secretary Jim Mattis, visited troops near McAllen, Texas, and defended the use of the military for border security.Mattis said that within a week to 10 days, the troops currently deployed along the border in Texas, Arizona and California will have accomplished all the tasks initially requested by Customs and Border Protection, although he said additional requests were expected.Shanahan did not go into detail beyond saying substantial additional troops do not appear to be required."We've pretty much peaked in terms of the number of people that are down there," he told reporters at the Pentagon. He noted that the current mission is scheduled to end Dec. 15, adding, "That could always be amended."Mattis, while on his way to visit troops along the border in south Texas on Wednesday, declined to provide an estimate of how much the mission will cost.In his most extensive remarks about the hastily arranged mission, Mattis argued that it fits an historical pattern dating to early in the 20th century. He noted that President Woodrow Wilson deployed tens of thousands of National Guard and active duty troops to the border in 1916 in response to a Mexican military raid into the U.S. led by Gen. Francisco "Pancho" Villa.He noted that more recently, National Guard troops were used in border missions ordered by President George W. Bush and President Barack Obama, although not on the cusp of a midterm election.Mattis did not say how soon the mission might end.In addition to the 5,800 active duty troops in the border area, about 2,100 National Guard troops have been providing border support since April.Critics have questioned the wisdom of using the military on the border where there is no discernible security threat. Since the Nov. 6 election, Trump has said little about the matter, and no border threat has yet materialized.Asked whether he believes there is a security threat at the border that justifies the use of the active duty military, Mattis said he defers to the judgment of Homeland Security Secretary Kirstjen Nielsen, who joined him at the border Wednesday.Mattis said the short-term objective is to get sufficient numbers of wire and other barriers in place along the border as requested by Customs and Border Protection. The longer-term objective, he said, is "somewhat to be determined."Mattis said the mission, which does not include performing law enforcement tasks, was reviewed by Department of Justice lawyers and deemed a legal undertaking. "It's obviously a moral and ethical mission to support our border patrolmen," he said.___AP Radio correspondent Sagar Meghani contributed to this report. 3109
We will not be silent.We will not be neutral.We will not be passive. pic.twitter.com/TB7IjMpoYs— Indianapolis Colts (@Colts) September 13, 2020 151