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A Denver family is trying to raise million in order to cure their son with a rare genetic disease. Doctors told Amber Freed that her 2-year-old son is one of 34 people in the world to have this rare neurological genetic disease. “The disease is so rare, it doesn’t even have a name,” Freed said. “It’s called SLC6A1, because that is the gene that it effects.” The disease causes Maxwell to have trouble moving and communicating, and soon it will only get worse. “The most debilitating part of the disease will begin between the ages of 3 and 4,” Freed said. “So, we are in a fight against time.”Maxwell has a twin sister named Riley. “I noticed early on that Maxwell wasn’t progressing as much as Riley,” Freed said. “I noticed he couldn’t use his hands. The doctors told me that every baby can use their hands. That’s when I realized there was something wrong with him.”After multiple visits to the doctor, Freed was able to find a genetic specialist to give Maxwell a diagnosis. “He looked at me and said, ‘Something is very wrong with your son. I don’t know if he’s going to live,’” Freed said. “My soul was just crushed. It was a sadness I didn’t even know existed on earth. You never think something like this could happen. I left my career, and I had no other choice but to create my own miracle and to find a treatment forward to help Maxwell and all those others like him.” Freed searched for scientists trying to create a cure, which she found at the University of Texas Southwestern Medical Center in Dallas. “We’re working with diseases where kids are born with a defective gene,” said Steven Gray, an associate professor at UTSW in pediatrics. “Our approach is to replace that gene to fix the condition at the level of their DNA. We’re taking the DNA that those patients are missing and packaging that into a virus and use that virus as a molecular delivery truck to carry those genes back in their body and fix their DNA.” “It’s a rare disease, no one has ever heard of it,” Freed said. “But one rare disease messed with the wrong mother.” Freed said she has raised million to help with research for the cure and will need an additional million, in order to let Maxwell and many others continue to enjoy life. “I want Maxwell to have every opportunity that children should have in this life,” Freed said. “When he is having a good day, I just try and soak him in as much as I can. We don’t take anything for granted in this house.” If you want to help donate for the cure, you can do so by visiting 2535
A federal judge in New York on Wednesday will field another clash over House Democrats' pursuit of President Donald Trump's financial records.The hearing, regarding subpoenas sent to two banks that handled Trump accounts for years, comes the same week that a judge in Washington, DC, said an accounting firm would have to comply with a subpoena from Congress, knocking down Trump's legal challenge within days of hearing arguments in the case. Trump's legal team appealed on Tuesday, but the Memorial Day subpoena date still stands because the appeals court has not yet intervened.A major question is how long Trump's challenges will take to proceed through the courts -- and whether the President could delay the subpoenas through his 2020 re-election campaign.The two court cases over House subpoenas, running closely in tandem, represent a major attempt by Trump to prevent Congress from reaching his personal and business records. The House of Representatives has also requested Trump's tax returns from the IRS, and Democrats in the House and the Senate are pursuing another court case that may allow them to look into the President's business records for signs of foreign influence.In the New York case, the House Financial Services and Intelligence committees requested a large swath of Trump family and business records from Deutsche Bank and Capital One bank in April, saying they need the records to consider banking policy revisions and to investigate the President's financial tangles with foreign powers, such as Russia.Trump's private legal team argues that the records requests violate his and his family's privacy and have no legislative purpose.The judge in New York, Edgardo Ramos, an Obama appointee, is unlikely to make a final ruling during Wednesday's hearing, which begins at 2:30 p.m. It's also not clear yet whether the judge will want to handle the case in stages, as is typical -- a tactic the judge in DC rejected, as it would have effectively allowed Trump to further delay his accountant's response to the subpoena. 2057
(1/9) Hi all, Katy again- this will be my last post on Edward’s social media. I wanted to provide an update about Edward’s passing that may help people in processing it and making a little more sense of what happened. pic.twitter.com/6x7HPsZqZn— Edward Aschoff (@AschoffESPN) January 16, 2020 304
A judge ordered President Donald Trump to pay million to a collection of nonprofit organizations as part of a settlement with the New York state attorney general's office to resolve a civil lawsuit that alleged "persistent" violations of charities law that included unlawful coordination with the 2016 Trump presidential campaign, according to a court filing Thursday.Filed in June 2018, the lawsuit alleged that the President and his three eldest children -- Don Jr., Ivanka and Eric -- violated federal and state campaign finance laws and abused the Donald J. Trump Foundation's tax-exempt status. According to the lawsuit, the Trumps allowed the foundation to be used "as little more than a checkbook to serve Mr. Trump's business and political interests."The settlement comes in the wake of an agreement by the foundation in December to dissolve under judicial supervision.Attorneys for the charity had said that "all of the money raised by the Foundation went to charitable causes to assist those most in need," and accused the attorney general's office of political motivation, citing campaign trail comments made by Attorney General Letitia James, who took office in January.Trump himself had vowed to fight the lawsuit, 1243
A driver jumped a curb in Harlem in New York City, striking a father and son out for a walk, and then got out of his BMW and slashed the dad, police said Thursday.The 32-year-old dad was with his 8-year-old son on Nov. 6 when a BMW jumped the curb, officials said. The father and son fell through a gate.The driver got out of the white BMW and slashed the dad.Police said the man and his son were hospitalized with non-life threatening injuries.Police have asked for help identifying the driver.This article was written by Aliza Chasan for 552