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A Colorado family is reaching out to the public for help in treating their 15-year-old son’s rare and debilitating skin condition.For seven years, Jaiden Rogers has suffered from stiff skin syndrome, a disease that causes the skin to harden.“When they said it was stiff skin syndrome – I was like oh good it’s only that,” said Natalie, Jaiden’s mother. “But the doctor said, ‘oh no I don’t think you understand.’ They said his skin would turn to stone. Within a month, he was in a wheelchair. It spread so fast. Within just a few months, he was starting to get it everywhere.”The condition has caused his skin to gradually tighten and harden, spreading from his legs to his hips and then to his stomach and neck.It started as a growth behind his knee. Jaiden has since lost mobility. The syndrome is a painful one as the skin thickens, limiting joint mobility. The syndrome is sparked by a mutation change, and an exact treatment is unknown.With no cure for the disease, Rogers and his family are now banking on an experimental procedure to save his life.“Doctors in Ireland are working with doctors in London. This is very expensive,” Natalie said. “The whole treatment is .5 million, because they actually have to make something for him, because he is the only child. It’s our only hope, and we are running out of time.”Natalie says her son is “turning to stone,” leaving him unable to walk and sometimes giving him trouble breathing. He sees six doctors and takes chemotherapy drugs to slow the disease’s progression.Jaiden is being treated at Children's Hospital in Aurora, Colorado. He may be the only one in the world being treated for what has been tabbed stiff skin syndrome. Altogether, there have only been a few dozen documented cases of the disease.Today, Jaiden remains confined to a wheelchair and takes chemotherapy to slow the progression. However, the condition has since spread to his stomach, chest, and neck, making it difficult for him to breathe.The family has started a GoFundMe page to raise money for the experimental treatment. The fund’s .5 million goal includes 5,000 for a medical flight to Europe. 2142

A federal judge has dismissed several charges against Dr. Jumana Nagarwala in the historic female genital mutilation case, ruling that the federal law against female genital mutilation is unconstitutional.U.S. District Court Judge Bernard Friedman ruled that Congress did not have the power to enact a federal law that banned female genital mutilation in the United States.Instead, Friedman made the argument that the law was too broad and it violated Congress' powers, as the law does not stand up to scrutiny under either the Necessary and Proper Clause or the Commerce Clause of the US Constitution.He also found that laws penalizing Female Genital Mutilation should be handled at the state level, similar to laws regarding Criminal Sexual Conduct, battery or child abuse.  Shannon Smith is the Defense Attorney for Dr. Nagarwala.  She says the ruling is "absolutely a huge victory. When you actually studied the law they enacted, there was no constitutional basis for them to enact the law. It’s really an issue that should be left to the states."Smith also claims the doctors did not perform Female Genital Mutilation, saying instead they performed a mild form of female circumcision."What Dr. Nagarwala was doing, if we had gone to trial, would have been vindicated that she was not mutilating little girls. While we’re happy with the victory and we’ll certainly take it, there’s a part of me that’s a little disappointed that the public isn’t going to see the evidence brought out at a trial to see that she was never guilty of it in the first place," Smith said.The ruling comes after Friedman also dismissed a "conspiracy to transport minor with intent to engage in criminal sexual activity" charge in January. That was the only count that could have lead to life in prison for both Nagarwala and Dr. Fakhruddin Attar.Friedman's ruling leaves two counts in place in the case. Nargarwala is charged with "conspiracy to travel with intent to engage in illicit sexual conduct," and four of the defendants are charged with conspiracy to obstruct an official proceeding.Judge dismisses several charges in FGM case by WXYZ-TV Channel 7 Detroit on Scribd 2194

A convent in Livonia, Michigan, is mourning the loss of 13 nuns to the coronavirus. The Congregation of the Sisters of St. Felix of Cantalice, or Felician Sisters, lost 12 nuns to the virus between April 10 (Good Friday) and May 12, according to the Global Sisters Report publication.A 13th nun succumbed to the illness in June. Additionally, 18 sisters at the convent contracted the deadly novel coronavirus."We couldn't contain the grief and the sorrow and the emotional impact," Sr. Noel Marie Gabriel, director of clinical health services for the Felician Sisters of North America, told a reporter with Global Sisters Report. "We went through the motions of doing what we had to do, but that month was like a whole different way of life. That was our most tragic time. It was a month of tragedy and sorrow and mourning and grieving."You can read all 13 obituaries here.This article was written by Cara Ball for WXYZ. 928

A hack was detected earlier this month in a government computer system that works alongside HealthCare.gov, exposing the personal information of approximately 75,000 people, according to the agency in charge of the portal.In a statement to CNN, the Centers for Medicare and Medicaid Services (CMS) said the system that was exposed through the hack was the Direct Enrollment pathway, which allows agents and brokers to assist consumers with applications for coverage in the Federally Facilitated Exchanges, or FFE. The statement detailed that the agent and broker accounts that were associated with the hack were "deactivated, and -- out of an abundance of caution -- the Direct Enrollment pathway for agents and brokers was disabled.""We are working to get this functionality that exchanges agents and brokers use back up within seven days," a representative for CMS told CNN. When asked if the source of the hacking had been identified and if the system was in a good place ahead of the sign-up season beginning in November for coverage under the Affordable Care Act, the representative could not answer due to it being an active federal law enforcement investigation. 1177

A limousine carrying several couples to a birthday party failed to stop at an intersection in upstate New York and struck a parked vehicle, killing 20 people in the deadliest transportation accident in the United States in nearly a decade, according to authorities and a family member.The 2001 Ford Excursion limo was traveling southwest on State Route 30 when it didn't stop at the intersection with State Route 30 A and collided with an SUV in a parking lot shortly before 2 p.m. Saturday in Schoharie, New York State Police First Deputy Superintendent Chris Fiore said.All 18 people in the limo were killed, including the driver, Fiore said Sunday. Two pedestrians near the unoccupied, parked 2015 Toyota Highlander were also killed, he said.Valerie Abeling told CNN her niece, Erin Vertucci and Erin's husband Shane McGowan, who were married in June, were among the victims in the limo."My family is just going through a lot," Abeling said. "It's a horrible tragedy and there's no words to describe how we feel."Authorities are still notifying the families of victims and declined to release the victims' names, according to Fiore. 1143