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With ventilators hard to find amid the spread of the coronavirus, families across the world worked together to find a ventilator for a child in Ecuador. Wilson, at age 18 months, is at an age one half of children with Centronuclear Myopathy don't get to see."At the beginning, they didn’t get any diagnosis, it was 5 months until they got the diagnosis. The first months it was very uncertain what was going to happen. They had no idea and because of the disease is very, very uncommon and rare, the doctor had no idea," said Jen Bilbao, translator for the family."These children are born very weak, a majority of them do not breathe spontaneously on their own. They cannot eat orally, cannot sit up on their own," said Alison Frase, Joshua Frase Foundation cofounder.That means they need a ventilator, something that was in short supply here in the U.S. just a few weeks ago, but is nearly impossible to find in Ecuador. Frase's son, Joshua, was born with Myotubular Myopathy in 1995. He passed away 15 years later. And in his death, Alison started the Joshua Frase Foundation and an equipment exchange program."That’s the first family we have in Ecuador because normally the children there with this kind of diseases, unfortunately they don’t survive because there is not equipment," said Bilbao. "It’s very, very hard for them to go home so there’s little that they can do for them."Bilbao used to live in Ecuador. Now, she’s in Germany. She started CNM – Together Strong!, an association that helps families with centronuclear myopathies in Germany after her son was born with Myotubular Myopathy. Wilson’s parents got ahold of her after finding information online in Spanish — asking for help finding a ventilator so they could bring Wilson home."She was very desperate because she thought she was going to be at the hospital her whole life," Bilbao said, translating for Wilson's mom.Bilbao reached out to Frase to see if there was anything she could do to help."I was scrambling making posts on our private groups looking for the equipment to piecemeal this ventilator together," said Frase. "I knew I had a ventilator from, unfortunately, a child, actually a young man, that had passed this year, and I reached out to that mom, and she said absolutely you can have it."The ventilator came from a family in Utah, the plug, connectors, and other parts from another family in Utah, and the humidifier from a family in Texas. They were shipped to Bilbao’s brother who still lives in Ecuador to take to the family."We couldn’t ship it to the hospital because they were feeling that it’s going to get lost at the hospital. Then where they live there’s no post office because they don’t live in the city they live outside the city, it’s very hard for the post to get packages to them," said Bilbao.For Wilson’s parents, this gift is more than just a medical device."They felt really like they could breathe again. So it was not only a breath for their child, but a breath for them because they didn’t know what to do. And to know that somebody was going to help, it was very peaceful," said Bilbao. 3107
With the revolving-door slate of deals making it tough to keep track of what's coming and going to Netflix each month, we're here to help you catch some movies and shows you may have had on your list before they leave the service and become a lot harder to find.The hardest-hit this month is the loss of the beloved sitcom "Parks and Recreation." Fans of the witchcraft-themed TV series "Charmed" will also be sad to see it go. More than 30 movies are also leaving the service, including two "Terminator" and three "Jurassic Park" films.Here are the shows and films leaving Netflix in October, courtesy of What's on Netflix:October 1201240 Days and 40 NightsA Knight’s TaleBurnistoun (Seasons 1-2)Charmed (Seasons 1-8)Cheech & Chong’s Up in SmokeChewin’ The Fat (Season 1)Dear JohnDespicable MeDonnie BrascoDreamWorks Happy Holidays from Madagascar (Season 1)Frances HaGargantia on the Verdurous Planet (Season 1)House of the WitchInside ManInsidiousJurassic ParkThe Lost World: Jurassic ParkJurassic Park IIIK (Season 1)Limmy’s Show! (Seasons 1-2)Menace II SocietyMillion Dollar BabyMortal KombatMudNura: Rise of the Yokai Clan: Demon Capital (Season 1)Parks & Recreation (Seasons 1-7)Resident Evil: AfterlifeSchindler’s ListSeabiscuitSinisterStarship TroopersSwami Baba Ramdev: The Untold Story (Season 1)Terminator 3: Rise of the MachinesTerminator SalvationThe Devil’s AdvocateThe Social NetworkZack and Miri Make a PornoThis story was first reported by Phil Villarreal at KGUN in Tucson, Arizona. 1517
– One Pantry At a Time – to get grocery store gift cards to those students and their families in need. The concern: parents working hourly jobs that have been cut back – or laid off altogether – may be putting the ability of those families to get food at risk. “They're losing all of their money now,” Vena said. “They've got nothing coming in. So, for us, this was what do we need to do.” Partnering with the school principals in Arlington, the teachers are working on getting a 0 grocery store gift card into the hands of all 8,300 students who get free and reduced school meals. It’s not an official school district fundraiser – just something these teachers took it upon themselves to do. They document, via photograph, each time they meet with a school principal at the school, to hand them the gift cards for distribution. So far, they’ve raised nearly 0,000. “I think as soon as people saw that there was an opportunity to help those in need, they jumped on it,” Springberg said. “And I know that there are communities all over the country with like-minded people, who really just need some direction and to know how they can easily help the less fortunate.” It’s an idea they hope spreads beyond their community. For more information on the work they are doing, 1277
invaded the afternoon sky high above the Kansas City on Thursday.Was it a bird?Was it a plane?Was it Superman?Or *gulp* the staging of an alien invasion?Even the National Weather Service was stumped initially. 211