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The doctors aren't the only ones who are critical of the CDC's handling of the devastating disease.On Saturday, five families whose children have AFM gathered at the home of 10-year-old McKenzie Andersen in Albany, Oregon, to celebrate an early Halloween. On the actual holiday, McKenzie will be having surgery related to a complication of the disease.McKenzie was a happy, healthy, hip-hop-dancing first-grader when she developed pneumonia in 2014. Within four days, she was paralyzed below the neck.Today, she can move only her left hand and her feet and toes. She spends nearly all her time in bed, a ventilator breathing for her.As the families munched on Halloween treats at McKenzie's home, they talked about their disappointment in the CDC. The mothers say the federal agency should be doing a better job letting emergency rooms know about the signs of AFM.The women, who help run a Facebook group for hundreds of parents whose children have the disease, say that even today, six years after the first set of cases, emergency rooms still frequently send children home when they have signs of AFM, attributing the paralysis to a pinched nerve or some other cause.LeMay Axton said it happened to her granddaughter, Cambria Tate, when she was 2 years old. Now 4, she gets around in a wheelchair, or by scooting around on the floor.She said she'll always wonder whether Cambria would have more mobility if her AFM had been caught sooner. She wonders why it wasn't, given that Cambria got sick in 2016, four years after the first cluster of cases of AFM."When I look back it now, I think to myself, 'why didn't they know? Why didn't they realize? Why didn't they catch something like that?' " she said.She said the CDC should be reaching out to hospitals with specific instructions about the signs of AFM, such as weak limbs and a drooping face, and what to do about it."Come on, it's 2018. They need to get busy," she said.Although the CDC hasn't reached out to hospitals directly about AFM, it has reached out to state health departments and other agencies.In 2014, in 2016 and again this year, the CDC provided state health departments with an example of a letter they could send to health care providers describing the symptoms of AFM.The federal agency also sent information about AFM to more than 6,000 professionals at local, state and federal agencies. State employees were also given directions on how to send laboratory specimens to the CDC for testing.The parents in the Facebook group also criticized the CDC for being out of touch with them and other families affected by AFM.The parents say they've gathered data on hundreds of children with the disease and have offered to share it with the CDC, but when they've reached out to the agency, they receive a form letter thanking them for their interest.Messonnier, the CDC doctor, said parents' voices are "really important.""For other diseases that I work on, we definitely engage directly with the advocacy groups," she said. "I guess I didn't know about this particular Facebook group." 3053

The American Academy of Pediatrics published a new clinical report accompanying the study, with recommendations for breastfeeding and pregnant women who use marijuana.The recommendations state that marijuana should not be used during pregnancy and that marijuana use while breastfeeding is discouraged -- but they also recommend women be informed about the lack of definitive research on this topic and counseled about the current concerns regarding potential adverse effects of THC on pregnancy and child development.This emphasis on being informed was something that stood out to Dr. Alison Stuebe, an associate professor of maternal-fetal medicine at the University of North Carolina School of Medicine in Chapel Hill, who was not involved in the clinical report or the study."Very often, medical documents make statements that women should 'not be allowed to breastfeed when they use marijuana.' That approach presumes that women need to be told what to do, rather than being given information to make informed decisions," said Stuebe, who is also a board member of the Society for Maternal-Fetal Medicine."As a women's health provider, I believe we should provide women with information and advance their understanding so they can make informed choices," she said. "I was really happy to see counseling as an emphasis of this document."Dr. Sheryl Ryan, a professor of pediatrics and chief of the Division of Adolescent Medicine at Penn State Health Milton S. Hershey Medical Center, wrote an editorial that accompanied the new study.She wrote that both the American Academy of Pediatrics and the American College of Obstetricians and Gynecologists recommend counseling moms to abstain from all cannabis products if they wish to breastfeed.The new study provides support for those recommendations, she wrote."But the picture is incomplete without our understanding of what is happening at the level of those infants exposed to cannabinoid-containing breast milk," she wrote. "Hopefully, the calls for research to answer these important questions will not go unheeded." 2072

The day before the synagogue shooting, Earnest bought a Smith & Wesson AR-15 rifle from a San Diego gun shop, according to federal charges. Officials have said he bought the gun legally. 190

The First Lady and I are shocked and grieved by the sudden passing of Baltimore County Executive Kevin Kamenetz. Our prayers go out to his family and many loved ones this morning.— Governor Larry Hogan (@GovLarryHogan) May 10, 2018 231

The doctor says they have seen a lot of colds and other illnesses that are typical for this time of year, but nothing that poses a health risk to San Diego.“Whenever you have a large group of people in a confined space with limited access to sanitation you have the potential for multiple different diseases spread,” said Sierra, “so we’re hoping that we can contain any problems that might have arisen.” 404