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A Colorado family is reaching out to the public for help in treating their 15-year-old son’s rare and debilitating skin condition.For seven years, Jaiden Rogers has suffered from stiff skin syndrome, a disease that causes the skin to harden.“When they said it was stiff skin syndrome – I was like oh good it’s only that,” said Natalie, Jaiden’s mother. “But the doctor said, ‘oh no I don’t think you understand.’ They said his skin would turn to stone. Within a month, he was in a wheelchair. It spread so fast. Within just a few months, he was starting to get it everywhere.”The condition has caused his skin to gradually tighten and harden, spreading from his legs to his hips and then to his stomach and neck.It started as a growth behind his knee. Jaiden has since lost mobility. The syndrome is a painful one as the skin thickens, limiting joint mobility. The syndrome is sparked by a mutation change, and an exact treatment is unknown.With no cure for the disease, Rogers and his family are now banking on an experimental procedure to save his life.“Doctors in Ireland are working with doctors in London. This is very expensive,” Natalie said. “The whole treatment is .5 million, because they actually have to make something for him, because he is the only child. It’s our only hope, and we are running out of time.”Natalie says her son is “turning to stone,” leaving him unable to walk and sometimes giving him trouble breathing. He sees six doctors and takes chemotherapy drugs to slow the disease’s progression.Jaiden is being treated at Children's Hospital in Aurora, Colorado. He may be the only one in the world being treated for what has been tabbed stiff skin syndrome. Altogether, there have only been a few dozen documented cases of the disease.Today, Jaiden remains confined to a wheelchair and takes chemotherapy to slow the progression. However, the condition has since spread to his stomach, chest, and neck, making it difficult for him to breathe.The family has started a GoFundMe page to raise money for the experimental treatment. The fund’s .5 million goal includes 5,000 for a medical flight to Europe. 2142
A federal judge approved the public release of documents that had been under seal in a case involving Ghislaine Maxwell.She is the former girlfriend and confidant of the late, disgraced financier Jeffrey Epstein.She's also an alleged accomplice in his sex-trafficking ring.The judge ordered the court to have the documents ready within a week.They're from a 2015 defamation case brought by Virginia Roberts Giuffre.She says Epstein sexually abused her while she was a minor -- and Maxwell was involved.Guiffre also says Epstein forced her to have sex with Britain's Prince Andrew.He denies that and the lawsuit was settled in 2017.Included in the documents are Maxwell's 2016 deposition, in which she denies knowing Epstein had a scheme to recruit underage girls for sex.Maxwell has pleaded not guilty to federal charges in the Epstein case and is in jail, pending trial.Epstein died in a jail cell last August while awaiting trial. 940
A judge has decided a university was justified in moving an event by conservative commentator Ben Shapiro to a smaller venue for safety concerns, according to reports.Shapiro, a lawyer, former Breitbart editor and author of several books, was scheduled to speak at the University of Minnesota in February 2018.The group that requested Shapiro’s appearance, Students for a Conversative Voice, requested the use of a large, 1,000+ seat venue on the Minneapolis campus. However, University officials at the time decided the event needed to be held at a venue on the St. Paul campus that seats less than 500 people because of security concerns.The student group claimed in their lawsuit against the university the venue change resulted in limiting the number of people who could attend and denying them the ability to participate in the event.A judge on Friday threw out the lawsuit, according to the Pioneer Press, saying the university had legitimate safety concerns because of other incidents after Shapiro events on other campuses.Large crowds of protesters have appeared at Shapiro events, some resulting in arrests. At a September 2017 event in Berkeley, California, part of the area around campus was closed down and barriers erected to handle demonstrators; several people were arrested during the incident.The University of Minnesota reportedly spent ,000 on security for their event in February 2018. 1417
A digital broadcast network jointly owned by the AMC, Cinemark and Regal chains is adding 200 movie theaters to its distribution of live events.The addition will happen throughout the next year to year-and-a-half in North American, Fathom Events announced this week. Fathom's expansion reaches to more than 1,100 total cinemas and 1,700 screens across the country, a report from Variety states. The expansion is part of an extended agreement with Dish Network that provides the delivery of pre-recorded and live cinema events.Theater chains with screens that will or already do carry live events include AMC, Cinemark, Regal, Harkins, Megaplex, Bow Tie and more.On Thursday, theaters showing Fathom events live will carry an advance screening of the first two episodes from the new YouTube Red Original Series, “Cobra Kai.” The series based on the Karate Kid franchise.Nearly 700 cinemas nationwide will host Thursday's screenings, Variety reported. 987
A crowd of about 250 protesters on the University of North Carolina at Chapel Hill's campus knocked over the controversial Silent Sam Confederate statue, according to the university.A video and pictures from a student shows the statue coming down on Monday as students chant "I believe that we will win." Video footage from WRAL-TV shows protesters putting up poles and banners around the statue during daylight. By nightfall, video from WRAL shows the statue falling down and students cheering. Protesters could also be seen kicking Silent Sam's head and putting dirt on the statue. 591